Showing posts with label video. Show all posts
Showing posts with label video. Show all posts

Monday, June 6, 2016

That viral video about a doll: What I wish people learned


Like many people, I lost it when I watched the viral video of the girl with a prosthetic leg who got an American Girl doll with a prosthetic leg. "It's got a leg like me!" made tears roll down my face but when Emma Bennett told the camera "Thank you for making a doll like me," I sobbed. That happens every single time I watch it. 

For sure, 10-year-old Emma Bennett of Cypress, Texas, was crying tears of joy. But I also felt her relief pouring through my screen, and it gripped my soul. As Emma's mother, Courtney, told KTRK, she knew her daughter would love the doll—"we never knew how much she really just needed it."

The tears I shed watching Emma were for her and Max, my reaction to the challenges he faces—not from his disability, but from the isolation and alienation he has to contend with. I'll bet that other parents, whether they have a child with cerebral palsy, Down syndrome, autism, or other special needs, felt the same.

It can be lonely to be a child with disability. Some kids—and adults—aren't sure how to behave around a kid with noticeable differences; they forget that they are still kids. Some kids aren't sure how to play with those who have disabilities. Some people just stare or gape or gawk or whisper.

At our annual block party this weekend, I watched a group of boys standing in a circle and lobbing a big plastic ball at each other. Max played nearby, pushing around a Radio Flyer wagon and not paying the boys much attention, a typical scenario. As usual, I was grateful that Max felt content to do his own thing. Yet while I didn't fault any of those boys for not reaching out to include Max, I wish they had thought to. Sometimes, Max isn't aware of what he's missing out on, but I am.

So when I saw Emma crying, and so deeply grateful for a doll that resembled her, I cried for her and my boy Max. I cried because I wished that kids with disabilities didn't have it so hard at times. I wish that they didn't feel isolated from their peers, and weren't made to feel different. I wish that their disabilities didn't become their defining characteristic. I cried because I know how awesome Max is, but some people look at him and feel mostly pity. I cried because he deserves to be an equal member of society, but he's not always treated as such.

The video of Emma getting her doll with a prosthetic leg had 32 million views last time I looked. You could walk away from it full of feels and be so glad that Emma got the special doll, that she had parents who thought to give it to her and that there are companies like A Step Ahead Prosthetics that make limb-different dolls, then get on with your life. It could be as relevant to you as any of the kajillion other heartwarming viral videos you've seen about puppies and babies and cat rescues, a fleeting feel-good thing.

Or.

You could remember this girl's reaction and the relief she felt to not feel so alone. And perhaps you could use the video as a kick-off point for a conversation with your child about kids with disabilities. You could ask your child why he or she thinks Emma cried the way she did, and how he or she thinks it feels to have a prosthetic leg. You could point out how children with disabilities love dolls—just like any other kid. You could note that they like to have friends and feel included, just like any other kid. You could talk about what's more alike than different. You could talk about everyone having their own abilities.

You can point out that all people are different and all people have challenges; some are just more visible than others. But every child and adult—whether they have a prosthetic leg or use a wheelchair or a walker, whether they speak in their own special way, whether they have trouble using their hands or they can't see or hear—would like to be treated the same as any other person.

Or, at the very least, you could remember this girl's reaction and the next time you come into contact with a child who has special needs, instead of wondering how to behave or not engaging, you could just say "hi." That child will feel good. You will, too.

Maybe, just maybe, this video could change people's reactions to children with disabilities. Maybe, just maybe, you could make a difference in the lives of children with special needs.

A mom can only hope. 

Image: Screen grab/Courtney Fletcher Bennett video

Tuesday, May 20, 2014

Video: This is what good occupational therapy looks like

This is a video Max's occupational therapist took during a recent session. It illuminates one key truth about any kind of therapy for kids with special needs: It has to be fun. Here, she put Max's new firefighter obsession to good use. In doing so, she got Max to verbalize, grasp objects with both hands, raise his arms above his head (not an easy motion for him), raise his legs and engage in imaginative play. In case you're wondering, she was encouraging him to crawl because it works his arm muscles and is good tactile stimulation for his hands. 

I so love that slow-mo motion he makes at the beginning where he pretends the door to the fire house is going up. Also: He does a darn good imitation of a fire engine siren.

Wednesday, September 12, 2012

Max walks up stairs by himself for the first time: the video


For a couple of years now, Max's physical therapists at school have been working on getting him to independently walk up and down stairs. This is tricky for him, because it involves grasping a railing (Max's hands don't always like to open up fully), core strength and coordination.

Using stairs is one of those things I never once in my life thought about until I had Max. After he started walking at age 3, I realized just how many movements are required to get you up and down stairs. Max has given me all sorts of new perspective on (and appreciation of) the ways bodies work.

I've always held Max's hand and supported his back as he walks up stairs in our home. Going down is harder for him and more perilous, and makes my heart lurch every time.

And then. We were on vacation at Smuggler's Notch, and Max decided to go up the stairs alone to our condo.

I was giddy. Jump and down and squeal "YEAH, MAX!" giddy.

What I also loved: How proud Max was of every single, hard-earned step.

When milestones like this happen, I flash back to my first meeting with Sue, the most lovely Early Intervention coordinator. Max was a month old. He lay on a blanket on the living room floor as I told her what had happened to him, and my fears about his future. Sue stared at me kindly. "He will surprise and amaze you, you'll see," she said.

He's never stopped.

Friday, June 15, 2012

This is what an amazing dad looks like (bet you know one, too)




Happy early Father's Day, honey!

Friday, April 27, 2012

A teen with Down syndrome crowned prom king, and my dream for future kings


Last weekend Max Jackoski, a high school junior with Down syndrome in Lake George, New York, was named prom king. His mom, Lisa Jackoski, taped this video of his coronation. As she said, "Many of his classmates approached us after the coronation and said they decided as a group that it would mean more to Max than any of them." Max got a standing ovation.


He attended prom with a classmate, Hahnah Saroff, who'd reportedly asked Max's parents permission first before asking him out. "I wanted to go to prom with Max because I knew I would have a fun time," she's said. "I would see him at school or at the store down the street from our houses and he always had a smile on his face. His joyful attitude was contagious."

The trend of teens with Down syndrome being named prom queens and kings is all sorts of awesome, and inspiring to me as a parent of a kid with special needs. What I hope for is the day when those with Down syndrome, cerebral palsy or other special needs do not make headlines such as "Lake George Prom King Defies Odds." Because a lack of media attention would mean a prom king or queen with special needs is typical. No biggie. Just another cute, popular teen scoring classmates' votes and a crown.

Someday.

For now, this is real progress. Max is prom king, his family is psyched, he is psyched, and I am so lifted by his bliss.


Image: Courtesy photo 

Thursday, April 26, 2012

Why teachers abuse kids with special needs (and how to tell if something's up)


A boy with autism bullied and abused by teachers: The story's been zooming around the web this week. It's horrifying and, if you have a child with special needs, particularly gut-churning. I'll recap it for you:

Stuart Chaifetz is dad to Akian, a ten-year-old with autism who attended Horace Mann Elementary School in Cherry Hill, New Jersey. As Chaifetz recounted in a piece he put online and video he uploaded to YouTube, he started getting notes home from school that his son was acting violently. That confounded him; Akian, he's said, is a sweet-tempered kid. Finally, Chaifetz placed a digital recorder in Akian's pocket and sent him off to school. What he heard shocked him. "They were literally making my son's life a living hell," he says in the video. "They treated [the kids] as if they were sub-human."

You hear the aide berating Akian and saying "Shut your mouth" and a woman labeled the teacher saying to him, "Who are you talking to, nobody?" Once, after an outburst, he's told "Oh, Akian, you are a bastard." The tone of their voices is derogatory throughout.


Google around and you'll find a bunch of similarly outrageous incidents. Last month, a mom of a 10-year-old with cerebral palsy in Alabama also wired him up for school, suspicious of abuse. In the recording, Melisha Salinas heard an aide and teacher say disparaging things to her son such as, "You drooled on the paper, that's disgusting." In November, I wrote a post on Parents.com about verbal abuse from a teacher and aide caught on tape by an Ohio parent of a teen girl with disabilities. Amongst the comments made: "Are you that damn dumb?" and "No wonder you don't have friends."

Teachers who abuse kids with special needs are exceptionally repulsive—they're attacking children who are more defenseless than other kids and who may not be able to speak up for themselves. Who are these people? A few bad apples, I figured. But the question literally kept me up at night. So I got in touch with the American Psychological Association, and they connected me with John R. Lutzker, Ph.D., Director of the Center for Healthy Development and Professor of Public Health at Georgia State University in Atlanta. He's an expert on developmental disabilities and child maltreatment.

While Dr. Lutzker cautioned that parents shouldn't be alarmed that teacher abuse of kids with special needs is a trend, it seems that there are some modern-day realities that make it particularly key for us to be on our toes. (Not that you need to wire up your child tomorrow.) What he had to say:

What sort of person—a teacher, no less—could treat a child so disdainfully and abusively?
"People who abuse and neglect children are much more likely to have experienced abuse or neglect growing up, or witnessed it, or had parents with mental illness. People are resilient and survive but anyone who experiences those things is more likely to perpetrate child maltreatment."

Why would anyone go into the field of special ed if they were disdainful of children with special needs? In my own experience, besides having infinite patience, these people usually care deeply about the kids. 
"While I can't interpret this situation, what I can say broad-scale is that education has become lower-valued and the resources may not be there. There is nowhere near the training there needs to be, both in terms of sensitivities, recognition and skills that all teachers—special needs or not—need. Aides are not all that well-trained, in fact, and are very poorly paid."

So you're saying that cutbacks in schools could have an effect on teacher's behavior? Not that it excuses calling a child a "bastard!"
"Certainly frustration about lack of education resources and anger in general and feeling incompetent could be a cause. No matter what the job, a person who isn't feeling successful because they don't have skills or resources is more prone to behaving unprofessionally. And these days, people don't have a filter. There's been a general lowering of social standards, and there is far more rudeness in general in society and fewer inhibitions to say whatever you want."

What's important for parents to keep in mind about keeping kids safe?
"Your child's school should have an open-door policy. Pay a surprise visit every now and then, but in the friendliest of ways! Go in to see how he's doing. It is a form of surveillance, but the fact of the matter is, school should be a place where parents are welcome—and professional standards are met. More resources for better training for teachers and aides would undoubtedly help a lot, but short of that it doesn't mean everything's hopeless. There needs to be an open relationship between the administration, parents and teachers."

What should parents be on the lookout for?
"You know your child far better than anyone else! In fact, there's some evidence that parents are better diagnosticians of developmental delays better than professionals like pediatricians. It's terrific these parents noted unusual behavior and did something about it. If your child is acting out, having more tantrums or behaving differently, pay attention. Kids will try every which way to communicate. The best advice for parents in general is let your gut be your guide."

Here's where you can sign Stuart Chaifetz's petition requesting that New Jersey officials fire teachers caught bullying kids.



Photo/Stuart Chaifetz

Friday, February 19, 2010

Appreciating our kids: a video you won't forget



Here's part two to today's post about savoring our kids' cuteness: this video clip of author Katrina Kenison reading from her book, The Gift Of An Ordinary Day. Thanks to Alexandra for the heads up; it is powerful, and especially meaningful to this mom of a kid with special needs.

Wednesday, March 18, 2009

Friday, November 14, 2008

Max is famous! Well, kinda sorta


I just got an e-mail from the Assistant Director/Principal at Max's absolutely amazing school, PG Chambers. They are doing a series of guest lectures called Menus For The Mind as a fundraiser; Jenny McCarthy is going to be speaking in May. Yesterday's speaker was Arianna Huffington, the genius behind my (and many people's) favorite news site, huffingtonpost.com. Check out the video above! Max is in the striped green/blue shirt, pushing a red ball around during a PT session and looking like his usual happy-camper self. And he closes the video, too.

Here's the article on the visit:
http://www.dailyrecord.com/article/20081114/COMMUNITIES16/811140328&referrer=FRONTPAGECAROUSEL

And here's what the principal had to say about the visit—how could I not brag?
"Max was having a great PT session with Janel and he totally enthralled the group. So much they wouldn’t leave the mini gym! He certainly knows how to play the camera."

Max has been charming people since he was a baby. It's one of his many talents.

Can you just feel my pride radiating from the screen?!






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