Thursday, May 17, 2018

Ben speaks Max

"How are people going to understand you if you don't use your iPad?" I asked Max last night.

"I can talk!" Max said, as he always does.

We were driving home from a school event where he got to paint pottery. He'd chosen a gumball machine, a teacher told me. Except when Max mentioned that in the car, "gumball" was impossible to understand. I told him that I knew what he'd said only because I'd been told.

"Max, you can definitely talk but sometimes the words are not easy for people to understand," I said.

"I hate the iPad!" he responded.

For a while now, Max has been resistant to using his speech app to communicate when he's around us. Max doesn't just want us to understand him, he expects it. And that's a problem, because often his speech isn't that easy to understand. He does vowels pretty well but consonants other than "m," not so much. At times, he gets frustrated with us. At times, I get frustrated with him for refusing to use his speech app, and frustrated with myself for not understanding him. When we reach an impasse, I'll either ask him to verbally spell out the word he's saying or to type it on my phone.

Max has a tendency to repeat things, which comes in handy as once I know how he articulates a word, I know it for good. "I'm moving to Orlando!" is one of his favorite phrases these days. (For the record, he's only moving in his dreams.) And of course, when he declares "I hate you!" to me to be annoying, it's pretty clear.

There is one person in our household who regularly gets what Max is saying. That would be Ben. Dave and I joke that Ben speaks Max. I guess it's like growing up with a second language in your house—it's the most natural thing in the world.


  1. Oh my goodness, could those 2 be any cuter?!? This reminded me of my granddaughter. She was trying to say Sponge Bob Squarepsnts and i didn’t have a clue what she was saying. She finally put her hands up to mimic playing the flute and said “ dodododo da do” in the tune to the theme song. We were cracking up, but she got her point across. She was pretty good at mimicking to get us to understand.

  2. This brings back memories. (I'm mid twenties with CP) My disclaimer is that if I start mumbling/sluring in front of you, congratulations, you're in my inner circle. Whenever you can understand me I'm code switching for you.

    Person I am dating seriously endeared themself to me last night when they said "one day I will understand your mumbles".


Thanks for sharing!