"How much do I share about my child's condition with others?" a reader writes. "He's a 10-month-old who was born at 32 weeks with a bilateral brain bleed of the most severe grade. I'm still figuring this all out. This weekend, we are getting together with several couple friends and their babies, who haven't seen our son since he was a few months old and do not yet know about his condition. It's hard to ignore the developmental delays, my son does not have good head control and cannot sit up. But like any mother, I want to protect my child, and there are many unknowns when it comes to his future. I don't want people's expectations, based on their ideas of disability, to put limits on him. I also don't want anyone to feel sorry for us. So, what should I say in situations like this?"
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