tag:blogger.com,1999:blog-401303964563152307.post7830252309744500686..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : Measuring our kids' progressEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-401303964563152307.post-33642917663541185052010-11-30T18:58:02.533-05:002010-11-30T18:58:02.533-05:00Wow you are a great mum. I find it so hard have a ...Wow you are a great mum. I find it so hard have a child with special needs. Every day is a huge battle . As he looks normal on the out side so people expect to behave like his age . Sometimes I get excited over small things and they are huge achievements for me and other people don't understand.<br />So I have been trying to create a community where parents can find services for their child and chat to each other on their unique child . Go to www.childofmine.com.auRoslynhttp://www.childofmine.com.aunoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-31849834266214487272010-06-02T23:43:53.118-04:002010-06-02T23:43:53.118-04:00AZ, you are so right—having fun is part of a kid&#...AZ, you are so right—having fun is part of a kid's job requirement! Rest assured, although we only go to these one particular rides annually, he does get to go to other kinds and do other fun stuff. Thank you for that reminder!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-34386350018640634402010-06-02T23:39:25.082-04:002010-06-02T23:39:25.082-04:00hay going on rides is suppose to be fun ...hay going on rides is suppose to be fun not annual max is a kid so his job is to have fun i know you have his best interest at heart but kids need to have bliss (non compartive fun<br /><br /> ps i am sorry if i hurt your feeling I swear that I did not mean toAZ Chapmanhttps://www.blogger.com/profile/07649451111980332722noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-69209887292803155482010-06-02T23:21:35.240-04:002010-06-02T23:21:35.240-04:00That is HUGE!!! He is such a champion! Overcomin...That is HUGE!!! He is such a champion! Overcoming! That is a word that came to my mind. Amazing lil guy you have :)Libbiehttps://www.blogger.com/profile/04707633636581398829noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-1091214143283507812010-06-02T22:22:56.631-04:002010-06-02T22:22:56.631-04:00I know, Max is looking older these days. Time to b...I know, Max is looking older these days. Time to break out the wrinkle cream. <br /><br />Felicia, who knows why he's made so much progress; maybe it is the stem cell therapy. I'll take it! I'll take it! <br /><br />Tiffany: AWESOME!<br /><br />Varda and MyMomShops: There is no specific group for moms of kids with Special Needs, to my knowledge. But now there will be!!! I'll put up a post inviting people at some point and we can pick a place.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35736009336676564252010-06-02T20:58:00.183-04:002010-06-02T20:58:00.183-04:00I can't get G to go on the tamest ride. He...I can't get G to go on the tamest ride. He's the biggest wuss.tulpenhttps://www.blogger.com/profile/09244442556884959190noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-34369804370625038312010-06-02T20:56:32.993-04:002010-06-02T20:56:32.993-04:00He He He...that's good stuff, Max! Keep it up!...He He He...that's good stuff, Max! Keep it up! I think we are all guilty of that, Ellen!Candacehttps://www.blogger.com/profile/04201448627487443779noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48491832996221959302010-06-02T19:52:24.514-04:002010-06-02T19:52:24.514-04:00So true. Thanks for writing this. Each summer, I ...So true. Thanks for writing this. Each summer, I wonder how my kids will do at the beach. We've had summers with refusals to touch sand, to go in the water, etc. Last summer my daughter "jumped the waves" with me for the first time in the ocean- and my son built his first sandcastle. These things felt like miracles.<br /><br />Is there a SN moms group at BlogHer? I'll be there and would love to meet up.mymomshopshttps://www.blogger.com/profile/09909337957811111720noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88017603939625282732010-06-02T16:23:53.626-04:002010-06-02T16:23:53.626-04:00Max is looking so much older! He has done some gr...Max is looking so much older! He has done some great things this year and that is definitely worth celebrating. Thanks for the reminder that I need to look at what my daughter is doing instead of dwelling on the things she isn't. <br /><br />DawnWherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35357835977985460872010-06-02T15:15:17.677-04:002010-06-02T15:15:17.677-04:00I agree, it is so very important to do this, or we...I agree, it is so very important to do this, or we got bogged down in the slowness of development.<br /><br />I need to sit down and take note of what changes have come.Alexandrahttps://www.blogger.com/profile/00609629888008025050noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-39122644398125161712010-06-02T14:03:48.319-04:002010-06-02T14:03:48.319-04:00This post is dead on!! I measured Olivia's pro...This post is dead on!! I measured Olivia's progress this morning when we had to go get bloodwork and xrays done and she didn't shed one tear and she held still. I was overwhelmed with pride...the workers were probably like "OK, weirdo, settle down!" but it meant a lot to me!!Tiffanyhttp://www.elastamom.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70123245324790214012010-06-02T12:45:04.081-04:002010-06-02T12:45:04.081-04:00Jacob, my perfectly normal ahead of the game non-s...Jacob, my perfectly normal ahead of the game non-stroke kid would have hung out with Max on the cars. Jacob doesn't do rides. Period. I on the other hand could not get enough as a kid. Screamed when they told me I was too small for the roller coaster. I can't handle those rides anymore! :)S Hhttps://www.blogger.com/profile/09073269506657873579noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-85599058687445087952010-06-02T05:07:39.569-04:002010-06-02T05:07:39.569-04:00The big deal here (from my POV, anyway) is that yo...The big deal here (from my POV, anyway) is that you didn't have a meltdown or a freak-out or even a solid "Not-Doing-It" balk when you arrived at the rides--that's a wonderful indicator of progress. Max is dealing with a "whole lotta shaking going on" way better than last year, and that's great news and a big step forward! I wonder if the stem cell treatment is having an impact on his ability to manage a load of sensory input? <br /><br />Kids sometimes just like what they like, they feel safe with "the known," and don't always want to expand their horizons as fast as we might like. They can be little farts, set in their ways about everything from foods they like to clothing choices ("You're not gonna wear that old thing AGAIN, are you?") to amusement rides. It seems that Max likes CARS, and he especially loves PURPLE cars. He's got discriminating tastes in his amusement activities, and that's just swell for him. I'll bet, though, if there were a purple airplane at that place, he'd get interested in that ride! <br /><br />Sometimes, it's hard to see progress because you're so close, but, as you said, isolating that pointer finger IS a big deal--a HUGE deal--and Max's increasingly sophisticated sense of humor/teasing is pretty doggone profound, I'd say. <br /><br />So long as the direction is onward and upward, you've got cause to cheer. And of course, there's a whole summer coming up, with so many opportunities for our little darlings to surprise and delight us with new stuff!Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80343861348437960292010-06-02T00:44:08.072-04:002010-06-02T00:44:08.072-04:00What a cutie-- his hair is getting so long!
It ...What a cutie-- his hair is getting so long! <br /><br />It sounds like Max has made some real progress, no matter what his opinion on airplanes might be right now. <br /><br />Connor's performance at certain activities we do often varies incredibly widely depending on how he's feeling that day, the weather, how many people are there, and a variety of other mysterious factors that determine whether or not he'll participate or spend the entire time with his head buried in my shoulder. I never know what the day will look like!<br /><br />~JessJesshttps://www.blogger.com/profile/06306757421878995110noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70474577258818369352010-06-02T00:40:14.261-04:002010-06-02T00:40:14.261-04:00That's so funny, as summer rolls around again,...That's so funny, as summer rolls around again, I was just thinking about all those things we do once a year or so. In fact, my post on the NYC Moms blog that's going up tomorrow is about the Victorian Gardens Amusement Park and Jake & Ethan's history there. How funny. Also you might want to take a look at my latest post on my blog "The Squashed Bologna". It's all about Jake and called "From Autist to Artist."<br /><br />Again, really nice post, I'm sure every family w/ a SN child can really relate to the "Progress Marker" ups & downs.<br /><br />p.s. I'm looking forward to hanging out w/ you & the other SN moms at BlogHer and of course, I voted for you. twice ;-)<br /><br />p.p.s. Sorry I had to re-do my comment, I HATE typos.Vardahttps://www.blogger.com/profile/13542045802860922751noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-83196776206807199632010-06-02T00:15:46.917-04:002010-06-02T00:15:46.917-04:00Wow. Looking at these pictures, I'm pretty su...Wow. Looking at these pictures, I'm pretty sure he aged over night. <br /><br />I do the same thing with certain events--Christmas, the dreaded Easter Bunny picture--trying to see where Charlie measures up compared to last year. You're right, though, I need to stop making a big deal out of things that aren't worth it the stress.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.com