tag:blogger.com,1999:blog-401303964563152307.post7430310487335761348..comments2024-03-17T12:02:12.410-04:00Comments on Love That Max : What happened to Max: The day we found out that babies can have strokesEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-401303964563152307.post-89864554409602594012018-07-28T13:56:14.419-04:002018-07-28T13:56:14.419-04:00Thank you so much for sharing Max's story. As...Thank you so much for sharing Max's story. As I was reading I could sense the raw emotions coming from your page. You and your son are a beacon of strength and hope for other parents. Michelle Shttps://www.blogger.com/profile/06494134244605184143noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-23181473756483367332017-03-25T16:40:46.946-04:002017-03-25T16:40:46.946-04:00My son recently started having grand Mal seizures ...My son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-26631677792037961832014-03-17T12:49:03.222-04:002014-03-17T12:49:03.222-04:00My youngest son, Phoenix. Who is 10yo now, had a s...My youngest son, Phoenix. Who is 10yo now, had a stroke while I was pregnant with him. We found out when he was 9mo old because he was delayed with his motor skills and had a different way of crawling. Turns out that when I stared going into preterm labor at 29 weeks is most likely when he had his stroke. His pediatric neurologist at Dartmouth said my body saw him as defective and was trying to abort. He is a wonderful little guy and caught up with his peers in 3 monthsjust by working with Early Intervention coming to our house 2 times a week. By the time he was a year old he was just like any other kid. We also had no clue that babies could have strokes, let alone while still in utero.Kim N.https://www.blogger.com/profile/10600241131661518351noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-27322790123506798442013-12-12T13:54:27.467-05:002013-12-12T13:54:27.467-05:00Thank you so much for sharing Max's story. Aga...Thank you so much for sharing Max's story. Again, still a sobbing mess. I wish I could reach out and hug you and Max. You are strong, amazing people. Katehttp://findingcoopersvoice.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88104082082412465212011-11-07T20:28:57.703-05:002011-11-07T20:28:57.703-05:00I was reading Max's story, and I was just stru...I was reading Max's story, and I was just struck by how similar it was to my son's, Isaac. I had an induced labor, I had to be on oxygen, I pushed for a long time (but finally delivered after an hour and a half of pushing.) Later, when he was in the nursery, he started to have seizures with apnea and was rushed to the NICU. We found out later that he had suffered a stroke and was diagnosed with mild cp and epilepsy.<br /><br />I am so very glad to see Max doing well! Every time I tell people my son's story they immediately say, "I'm so sorry." Well, I'm not sorry. My son is such an amazing part of my life, and he is healthy. So he's slower than most kids his age...so what? He's a beautiful boy who has taught me so much, and who has made me appreciate the things I never paid attention to before.<br /><br />In closing, I want to tell say, thank you from the bottom of my heart for sharing Max's AMAZING story. He is a gorgeous boy, with a fantastic smile who can warm the coldest of hearts.Tashinahttps://www.blogger.com/profile/11661583693529051102noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77657789480903049912011-03-28T03:22:07.767-04:002011-03-28T03:22:07.767-04:00My son was born 6-16-2010 via a repeat c-section. ...My son was born 6-16-2010 via a repeat c-section. shortly after birth he couldn't keep his o2 up and was jerking so they sent us to a larger hosptial. Once there it was torture. They first thought it was a blood disorder because his blood was thicker than normal, then they noticed his seizures. After that we did the MRI and the next day the nuero met us in the nicu to discuss his findings. I remember I kept asking the nurses about his results and all I was told was the Dr. can explain better than me so we knew something wasn't right. I was sitting in the chair beside his bed and the neuro came in and said your son has had a LARGE right mca infarct which is a stroke. I lost it then and they then asked me did I want to see his MRI. I just couldn't and to this day still haven't. His stroke hit his parietal,frontal, and temporal lobes. I had a great pregnancy also. I am so glad I found your blog. Your son is so cute. Thanks from one mom to another for sharing your story!mommyto2https://www.blogger.com/profile/12837316825413097797noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-37604972158119467802010-07-22T02:21:36.952-04:002010-07-22T02:21:36.952-04:00Thanks for sharing. Max, Dave and your strength is...Thanks for sharing. Max, Dave and your strength is truely inspiring.Hillaryhttps://www.blogger.com/profile/12865779685718914314noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9466607123919659742010-03-19T09:20:59.659-04:002010-03-19T09:20:59.659-04:00Wow. I just recently came across your blog, and t...Wow. I just recently came across your blog, and though I see this series of articles was originally posted over a year ago, I just had to leave a comment and applaud you for being so candid. I too am a mom who didn't have the "normal" birthing experience; my twin boys were born at 26 weeks, both suffered severe complications that caused extensive brain injuries. We lost Michael suddenly in May 2008, and while Aaron is doing so much better than the original prognosis suggested, it is still incredibly difficult to think about, and talk about those early days. I recently started a blog of my own on my journey and have gotten such strength and inspiration from friends and from just hearing the stories of others...I am so glad your blog popped up when I hit "Next Blog". Your little guy is amazing, and so are you...thank you for sharing your incredible story!Treehttps://www.blogger.com/profile/03008224184346371325noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-41731021216247001392009-03-25T17:42:00.000-04:002009-03-25T17:42:00.000-04:00I read that relating to everything you were saying...I read that relating to everything you were saying. I have hear almost the exact same words coming from doctors mouths. From signigicant event to babies brains are like plastic. You have come a very long way, and I can only hope to be as positive as you are during our journey. <BR/><BR/>By the way, the saint may have been Saint Jude. He is the patron saint of lost hope restoring hope and faith to those that might not have any. Hence the reason we chose the name Jude ;)<BR/><BR/>You have inspired me to write out Jude's situation at some point. My blog has gone on for so long it's hard to piece it all together at times.Jennifer Ortizhttps://www.blogger.com/profile/14350225247489608653noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-32987345205163932742009-03-24T23:52:00.000-04:002009-03-24T23:52:00.000-04:00Ellen, Thank you for sharing your story. It takes...Ellen, Thank you for sharing your story. It takes a lot of courage to do so. I know that it must be difficult in some sense to write it down, even though years have now passed.<BR/><BR/>I can relate to so much that you write. FOr example, when Elijah was in the NICU, he looked so perfect. He was a whopping 9 lbs. 3 oz. and we'd have parents walk by and say, "Oh, you guys must be almost going home." We'd have to explain, that no...our son had brain damage and we didn't know when we'd get to bring our son home. That stopped the conversation. "Oh", they'd say and walk away not knowing how to respond.<BR/><BR/>Somehow these memories don't ever go away do they? But, in sharing your story, you help make moms like me feel not so alone. Thanks for that.Lisahttps://www.blogger.com/profile/14597901803216176184noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-34990646816353478092009-03-24T22:33:00.000-04:002009-03-24T22:33:00.000-04:00wow..your story brings out so much emotion! We we...wow..your story brings out so much emotion! <BR/><BR/>We were told that Kennedy possibly had a stroke in utero...then possibly again last year when she was 6 years old.Colleenhttps://www.blogger.com/profile/16274847603392804719noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87506189260631929352009-03-24T22:18:00.000-04:002009-03-24T22:18:00.000-04:00I hear you on the maternity ward. I was only in th...I hear you on the maternity ward. I was only in the hospital for a day and a half after Addison's c-section because she was across town at Children's, but being on that ward was pure torture....the babies, the sounds, the happy moms in the hall, the little chime that rang each time a baby was born. Just not the right place for a mom without her baby.Finding Normalhttps://www.blogger.com/profile/15542473853342128094noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-83538884989064527942009-03-24T22:12:00.000-04:002009-03-24T22:12:00.000-04:00Wow, thank you for sharing.Wow, thank you for sharing.heidi @ ggiphttps://www.blogger.com/profile/05245994200237421760noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-722600385371715592009-03-24T19:50:00.000-04:002009-03-24T19:50:00.000-04:00Man. . . and the not knowing is the absolute worst...Man. . . and the not knowing is the absolute worst. <BR/><BR/>You're lucky you got the diagram. Us, we were in cardiology and they didn't know crap about his brain. . . only that it looked very, very bad.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77381629793029763982009-03-24T18:38:00.000-04:002009-03-24T18:38:00.000-04:00I think we all had that moment where we just simpl...I think we all had that moment where we just simply couldn't believe "this" was happening to us. I look back now and think if it happened again how "seasoned" I would be--how used to tragedy and bad news I've become! <BR/><BR/>And while I didn't have the "I don't want a MR child" moment, I had the "I don't want a child who can't walk" syndrome. Oh, how I've learned since then--it's amazing how our children are perfect in their own little ways even though they may be seen as limited . . .AshleyShttps://www.blogger.com/profile/01039954885402518770noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-33467442970011748822009-03-24T15:08:00.000-04:002009-03-24T15:08:00.000-04:00Once again Ellen, thank you so much for sharing. ...Once again Ellen, thank you so much for sharing. I can only imagine what you were going through during that bittersweet time after Max's birth. We had 10 blissfully naive months before Daniel was diagnosed, but I remember a lot of those old feelings. <BR/>Max is truly an amazing boy. It's impossible not to feel proud of him, considering everything he has overcome in his six years.Johttps://www.blogger.com/profile/18335163039655404397noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-10421816325635684012009-03-24T10:47:00.000-04:002009-03-24T10:47:00.000-04:00Hi Ellen.I've been reading your blog for a long ti...Hi Ellen.<BR/>I've been reading your blog for a long time now, but never posted. Thank you for sharing your story. My daughter also had a bilateral stroke, and we have a hand drawn picture very similar to yours. You are an amazing mother and truly an inspiration to me!jocalynhttps://www.blogger.com/profile/07313874191250865765noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-38255885611116795612009-03-24T09:22:00.000-04:002009-03-24T09:22:00.000-04:00Again, you're making me feel grateful that we knew...Again, you're making me feel grateful that we knew months before Emmett's was born that his actual birth was going to be a nightmare.<BR/><BR/>Don't you kind of feel like you have post traumatic stress disorder from this whole thing? I relieve the events of that day all the time.Julia O'Chttps://www.blogger.com/profile/16330856629856439993noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-69698336244534619082009-03-24T08:33:00.000-04:002009-03-24T08:33:00.000-04:00Ellen, you write Max's story so beautifully. I sa...Ellen, you write Max's story so beautifully. I said yesterday that I can relate, but I can't relly relate to the one-two-three cacophany of events you endured. I went home with a baby I THOUGHT was fine. With me, it was the slow realization that something was amiss, rather than the stress of childbirth (in your case, difficult) followed by bad news and then worse news. <BR/><BR/>You are a strong mom. You're a great writer, too. Your babies are SO lucky to have you!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-66756628286756090412009-03-24T08:28:00.000-04:002009-03-24T08:28:00.000-04:00Thanks for taking the time to visit and comment on...Thanks for taking the time to visit and comment on my blog.<BR/><BR/>My stepdaughter had a stroke when she was 16. She's now 23, has 3 kids, but still not much use of her right arm. <BR/><BR/>When that happened, everyone seemed in shock it could happen to someone so young. I must admit, it never occured to me it could happen to babies too.Kim Ayreshttps://www.blogger.com/profile/02656677501116622953noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-41204357657264010472009-03-24T07:30:00.000-04:002009-03-24T07:30:00.000-04:00Ellen thank you for continuing to share your famil...Ellen thank you for continuing to share your families story- am glad to have happened upon this blog so many months ago and thankful for all your advice and good wishes<BR/>Thanks again!Mommy07https://www.blogger.com/profile/08908421440462009368noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-81362183551784510672009-03-24T02:06:00.000-04:002009-03-24T02:06:00.000-04:00Thank you Ellen, simply, thank you...Thank you Ellen, simply, thank you...Richhttps://www.blogger.com/profile/00796575896463029063noreply@blogger.com