tag:blogger.com,1999:blog-401303964563152307.post6504045190954038884..comments2024-03-28T03:35:52.176-04:00Comments on Love That Max : 9 ways to always have hope for your child with special needsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-401303964563152307.post-86218898599186856792015-09-16T15:31:48.333-04:002015-09-16T15:31:48.333-04:00Thank you for the article and all the encouraging ...Thank you for the article and all the encouraging and positive comments. Nisha, as parents we always think about what could or should have been.We talk about it sometimes, then move on... Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-13171062139941757772014-09-15T11:29:09.607-04:002014-09-15T11:29:09.607-04:00I love your comment about the timeline. I've a...I love your comment about the timeline. I've always said that I try not to focus on what others are doing but if my son yesterday could only move 1 finger and today he is moving 2 then I celebrate that. You are an amazing writer, blogger but above all mother and inspirer (if that's even a word...lol). Thank you for writing from your heart! Max is extremely blessed to have you as a mom!!Jessnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-18825649197574938762014-09-15T11:21:41.342-04:002014-09-15T11:21:41.342-04:00"So if the top notch neurologist you need bec...<br />"So if the top notch neurologist you need because of your kid's seizures isn't a positive person, but your therapists are, you have to learn who to listen to for what. And to trust yourself."<br /><br />These are absolutely amazing words. I've been struggling a lot lately because of hearing different sometimes opposite things from my son's (5 y/o with cp) physical therapists and teachers. He has a PT in school as well as at a hospital. They were recommending an electric wheelchair for my son and I felt completely against that right now. I thought I was wrong for it and was feeling bad because I was like, how can I think I know better than these therapists who have been in their profession over 25 years. I opted to not even let him sit in an electric wheelchair for fear that we would lose a lot of what we've done until now. He's even been wheeling his own wheelchair with both hands and even going backwards with no help. In conclusion, thank you, thank you, thank you!!<br />Jessnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-21472803905509589392012-02-16T04:49:44.401-05:002012-02-16T04:49:44.401-05:00I love your words . . I have an 11 year old daugh...I love your words . . I have an 11 year old daughter (with special needs) and have been telling people the same things you say here . . keep saying it, there are so many that need to read it and take it to heart . being a mom to a child with special needs isn't easy, it isn't always fun, but it is the most rewarding thing I have ever done. My daughter is kicking butt! <br />Go all you MOMs (and Dads) out there! meet these kids where they are at, love 'em, and put opportunities in front of them- they will shine. (and remember the "no timeline") <br />Amy<br />www.30millionsteps.wordpress.comoneofsixhttps://www.blogger.com/profile/05843629416927154477noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-85252725961641964382012-01-21T12:56:18.553-05:002012-01-21T12:56:18.553-05:00I am a counselor - this is inspiring for the famil...I am a counselor - this is inspiring for the families I work with :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-59431488538633740692011-08-25T17:55:52.502-04:002011-08-25T17:55:52.502-04:00Thank youThank youLittle Miss Gifthttps://www.blogger.com/profile/01762769198261623757noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-7464841134003925672011-08-25T05:42:43.623-04:002011-08-25T05:42:43.623-04:00I agree with Eric :) My mom - bless her heart she ...I agree with Eric :) My mom - bless her heart she loves me and does everything for me - but every time she looks at me I can see in her eyes and I even heard her saying to my dad once <em> Nisha is so smart imagine how great she would been if she could walk </em> that the problem with living in what could've been you're focuced on what you child could have been and missing out on what your child is.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87755842117492146802011-08-24T21:44:36.313-04:002011-08-24T21:44:36.313-04:00Really great advice--especially for moms new to a ...Really great advice--especially for moms new to a diagnosis. That's such a rough time!Cheryl D.https://www.blogger.com/profile/09325231488203008376noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48127940457358565952011-08-24T21:01:19.203-04:002011-08-24T21:01:19.203-04:00Good medicine for me today.Good medicine for me today.Anniehttps://www.blogger.com/profile/02377379882410723771noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-60522046820365706142011-08-24T18:06:38.663-04:002011-08-24T18:06:38.663-04:00I really love this. Wonderful advice.I really love this. Wonderful advice.Amyhttps://www.blogger.com/profile/11818818093248788832noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-54690127946436224612011-08-24T16:07:06.005-04:002011-08-24T16:07:06.005-04:00Excellent list. I would add that if you have a su...Excellent list. I would add that if you have a support group and it's stressing you out, find another. Sometimes going through special needs blogs stresses me out and I have to stop for a month or so. <br /><br />And I wish everyone positive doctors for their kids. Sometimes, the positive ones aren't always the best,and vice versa. <br /><br />So if the top notch neurologist you need because of your kid's seizures isn't a positive person, but your therapists are, you have to learn who to listen to for what. And to trust yourself.Staying Afloathttps://www.blogger.com/profile/06228636990839399469noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87407726396074978202011-08-24T16:03:12.828-04:002011-08-24T16:03:12.828-04:00It's so true that sometimes it seems like they...It's so true that sometimes it seems like they stop progressing, but it's only that we see our kids every day! When I look pack at pictures or videos or things I have written, I can't believe how far Esme has come. I honestly can't even imagine what she will be doing next year.Janehttp://rainbringsfrogs.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-81887990926776398872011-08-24T15:52:06.701-04:002011-08-24T15:52:06.701-04:00Wow. This was excellent. I will be linking it on m...Wow. This was excellent. I will be linking it on my blog today. Thank you!Jessihttp://www.lifewithjack.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-89501641980632600362011-08-24T15:06:44.526-04:002011-08-24T15:06:44.526-04:00I've always wondered about the wisdom of givin...I've always wondered about the wisdom of giving those "What Your 18 m/o Should be Doing Now" handouts to the special needs parents at well-child check-ups. At our doctor's office, it is right on the form they give you with the height, weight, and percentiles... I am sure they didn't give this a thought.Kate Jhttps://www.blogger.com/profile/10553553874360381779noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87430658104373688132011-08-24T14:39:52.636-04:002011-08-24T14:39:52.636-04:00I always try to think of how huge everything reall...I always try to think of how huge everything really is. <br /><br />Like with my brother, if I think something that is more negative like "I wish he could hold his head up independently", I try and counter it in my head with "But he can swallow now, and that takes so many muscles working in coordination, it's such a huge achievement, remember how happy everyone was when he started to swallow without choking. And you thought he'd never be able to do that, so maybe one day he will be able to support his head, or even sit up."Knoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-33144276957400827052011-08-24T14:31:46.359-04:002011-08-24T14:31:46.359-04:00That's pretty much always been my approach. Li...That's pretty much always been my approach. Life is too short to spend all your time beating yourself up, worrying, accusing, bargaining, comparing, or doing all that other "stuff" that doesn't make one whit of difference in the long run! All you can do is try to do the best you can, be positive as you can manage, and accept help from family and good friends when you plainly need it and it comes your way (that bit was hardest for me--I always wanted to do it all myself!).Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-20225301709913502011-08-24T13:22:35.935-04:002011-08-24T13:22:35.935-04:00Excellent advice...I really needed it today! :)Excellent advice...I really needed it today! :)Kristinehttps://www.blogger.com/profile/13994083459235522823noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77125663375416151142011-08-24T12:55:14.224-04:002011-08-24T12:55:14.224-04:00Great post! Very encouraging!Great post! Very encouraging!Wherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-52362090533058940512011-08-24T12:21:16.993-04:002011-08-24T12:21:16.993-04:00Beautiful advice for ALL parents and children! Sh...Beautiful advice for ALL parents and children! Sharing the link to your post on FB!Maleahttp://mandjinanutshell.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-34387824194885064602011-08-24T10:20:54.932-04:002011-08-24T10:20:54.932-04:00I stopped talking about milestones and instead sta...I stopped talking about milestones and instead started talking about inchstones. (I thought I was so clever when I came up with this and then I found out that lots of other people did too. ;) ) We celebrate all the little things and I try to see them as pieces of a larger puzzle that's slowly coming together.Marlahttps://www.blogger.com/profile/16809949267562980590noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-12129551825940218662011-08-24T10:15:36.632-04:002011-08-24T10:15:36.632-04:00Agree, and progress.....every ounce of progress is...Agree, and progress.....every ounce of progress is still progress. Don't worry about where your child is going, just the fact that he's not stagnant. He's moving forward.Rebeccahttp://landlock-mo.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-24782500291762502962011-08-24T10:01:00.696-04:002011-08-24T10:01:00.696-04:00if your child isn't "measuring up", ...if your child isn't "measuring up", maybe you are measuring with the wrong tool!<br /><br />I keep telling my hubby this. He keeps telling me " a teenager should be..." and I keep telling him "...but our autistic teen..."sarahhttps://www.blogger.com/profile/01751389029725410849noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35832822839440709782011-08-24T09:30:22.773-04:002011-08-24T09:30:22.773-04:00Great post, sharing on Facebook :)Great post, sharing on Facebook :)Cassiehttps://www.blogger.com/profile/08634885711864748059noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-1692961157686611152011-08-24T09:29:47.645-04:002011-08-24T09:29:47.645-04:00Very good advice, to take your child on their own ...Very good advice, to take your child on their own terms. It can take a while to get there but it is the best for them and for you.Penblethhttp://penbleth.co.uknoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-23320691204303527022011-08-24T09:16:39.029-04:002011-08-24T09:16:39.029-04:00Excellent advice, practical and empowering.Excellent advice, practical and empowering.Eric Fischerhttps://www.blogger.com/profile/02471331868560587898noreply@blogger.com