tag:blogger.com,1999:blog-401303964563152307.post6191590371238045819..comments2024-03-28T03:35:52.176-04:00Comments on Love That Max : Special needs and allergies: Advice from a celeb mom who knowsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-401303964563152307.post-68826567318986141302011-02-08T07:57:27.986-05:002011-02-08T07:57:27.986-05:00Finding out my son was allergic to peanuts was lik...Finding out my son was allergic to peanuts was like a punch in the stomach. We found out when he was about 2 1/5 when his speech therapist put a dab on his lips, and they swelled up. It hit me hard. People think it doesn't matter because he is tube fed, but it does. We try especially hard to give my son tastes of everything to encourage him to like the taste of food, and now we can't do that any more. Now we have to hold back if we are not sure about something. It is one more thing to deal with and worry about on a long long list.Meghanhttps://www.blogger.com/profile/16894953705785508713noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-41944267539924645572011-02-07T23:02:22.010-05:002011-02-07T23:02:22.010-05:00Red food dye. It causes horrible stomachaches in ...Red food dye. It causes horrible stomachaches in my older son. You'd be surprised where it hides: cheapy brand chocolates, Cinnamon Life,the yellow food coloring you get at the store. Also milk, but often that's actually easier.<br /><br />Thankfully, my E. doesn't have any yet, because due to his impulsivity and his meds, he eats everything. <br /><br />Besides the allergies, my oldest is on low sodium and I have a bunch of food allergies. If I had to keep everyone's problem food out of the house, we'd be drinking water. Thankfully, while my allergies will cause major itchies and sometimes asthma attacks, nobody's does anaphylactic shock. Yet.<br /><br />I like to say that you want to be around people with allergies. Because they will have an EpiPen near them, and if you or your kid gets a completely unexpected, new reaction, you have a much lower chance of dying.Staying Afloathttps://www.blogger.com/profile/06228636990839399469noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-59982624895399851922011-02-06T21:39:21.551-05:002011-02-06T21:39:21.551-05:00Elizabeth was originally allergic to eggs, strawbe...Elizabeth was originally allergic to eggs, strawberries and tree nuts. She also cannot tolerate milk. Thankfully she has outgrown strawberries and eggs but tree nuts are here to stay.<br />Elizabeth spent much of her early years vomiting which we blamed on reflux. After picking curdled (sorry) pieces of barf out of her linens for the millionth time (why - because they don't wash out, they just melt and stink in the dryer) I began to think that maybe the curdles were her not digesting.<br />We changed her to soy and the curdle vomit stopped. I started a diary of the immediate food vomit and discovered strawberries and egg were often the culprit.<br />As for nuts she breaks out in a rash around her mouth with a slight contact and I don't want to see what happens if she eats it.<br />She is really good at not being allowed to eat things and will yell if she sees an offending food.BusyLizzyMomhttps://www.blogger.com/profile/09116803603107554804noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35515149601494029752011-02-06T17:49:55.571-05:002011-02-06T17:49:55.571-05:00We're not aware of any actual allergies in our...We're not aware of any actual allergies in our 2 year old, but my husband and a bunch of his cousins are allergic to tree nuts, so we haven't fed our son anything with three nuts (especially hazlenuts, chestnuts, and brazil nuts) yet. I have a jar of mixed nuts that contain brazil nuts, and I keep them hidden and only eat them when both guys are out of the house and I brush my teeth after.<br /><br />The biggest impact on me is that we don't have nutella/eurocream in the house, something that I enjoy and which my husband will eat despite swelling up after eating it.Brigid Keelyhttp://www.brigidkeely.com/babynoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-84272100146143905482011-02-05T19:27:23.922-05:002011-02-05T19:27:23.922-05:00Oh yes
I can relate
My son is allergic to almost a...Oh yes<br />I can relate<br />My son is allergic to almost all food<br />He currently has 6 safe foods<br />and lives by a formula called Elecare which goes in his g-tube<br />He can only have<br />rice, apple, grapes, raisins, and we are trialing corn and broccoli<br />He has a disorder called<br />Eosinophilic gastrointestinal disorder <br />Check out www.apfed.org for more info<br />and he is on the spectrum<br />and has language delay<br /><br />Do I have permission to share your blog in my blog<br />It would help a lot of eos mamas<br />THANK YOUK.E.'s EOS fighthttps://www.blogger.com/profile/15059533959365954175noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-32276222506468501052011-02-05T12:58:15.856-05:002011-02-05T12:58:15.856-05:00No allergies here, thank goodness! Although I'...No allergies here, thank goodness! Although I'm sure Addison will find one, now that I've said that. Rotten child o mine. <br />I have mad love for Holly and The Talk. Love love love it. Even the hubby loves it. You do the coolest things, and you need to hook a girlfriend up! ;) Now that I'm not working, I would totally fly to the NYC from the ATL and go to all of these cool things with you. Okay, am I bordering on stalker yet???Finding Normalhttps://www.blogger.com/profile/15542473853342128094noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-38898010090885297272011-02-05T09:29:07.390-05:002011-02-05T09:29:07.390-05:00We have been fortunate that Samuel doesn't hav...We have been fortunate that Samuel doesn't have any allergies. Although at 5 yrs old his reflux got so bad and he didn't know how to tell us he was in pain, he stopped eating altogether. We kept trying to get him to eat, but he refused to open his mouth. It was the only way he communicate to us. It took us awhile--we are slow like that. But when he reach failure to thrive stage, we put in a g-tube. It was the best thing we ever did. To this day, he has never taken another bite of food orally.<br /><br />On another point, I really respect Holly and everything she advocates for and works for. However, she is wrong in one instances. It is Steelers all the way!!Unknownhttps://www.blogger.com/profile/09287057582749278383noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-49215426868769325242011-02-05T03:47:07.391-05:002011-02-05T03:47:07.391-05:00Makenzie has delayed allergies to a ton of stuff. ...Makenzie has delayed allergies to a ton of stuff. This does not cause an anaphylactic response but has caused her to vomit and reflux to the point of needing a j tube and a Dx of FTT. She is now on a gluten free, casien free, lactose free, dairy free, four day rotating diet and doing wonderful! It took me a while to figure out what worked and many blood tests but in the end it was so worth all of it!Makenzies Miraclehttps://www.blogger.com/profile/05661162667463266357noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-38508918170241415512011-02-04T23:54:40.516-05:002011-02-04T23:54:40.516-05:00My 4 yr old has a severe peanut/ cashew allergy. ...My 4 yr old has a severe peanut/ cashew allergy. He is typical, but I am terrified non the less about him entering Kindergarten next year and the cafeteria. We are trying to get the school district to go nut free. I'll let you know how it all works out. We are not the popular family by any means and he is just in preschool, but ADVOCACY is #1. His little 18mth old sister (Ds) has not had a nut yet, crossing our fingers and saying a lot of prayers that this doesn't affect her too!Jeneehttps://www.blogger.com/profile/04077321351913532725noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-42033878509802323872011-02-04T23:04:11.976-05:002011-02-04T23:04:11.976-05:00Thankfully, we haven't discovered any allergie...Thankfully, we haven't discovered any allergies left. I already feel like my non-verbal son (ASD) needs so much protection from life, I think I'd be a wreck if we discovered any serious allergies. But I know we just keep doing what we need to do to keep our little ones safe!Wantapeanuthttps://www.blogger.com/profile/11993949583915924482noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-50442405120952955642011-02-04T20:31:39.894-05:002011-02-04T20:31:39.894-05:00My kids are allergic to school and vaccinations an...My kids are allergic to school and vaccinations and the dentist. Other than that, the little garbage disposals can eat everything and anything...which they do.Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-22647285350729650372011-02-04T19:52:29.938-05:002011-02-04T19:52:29.938-05:00Oh yeah, I'm a nut allergy. and eggs, and soy,...Oh yeah, I'm a nut allergy. and eggs, and soy, and off brand hot dogs. haha. My parents were always really careful and then I just sort of learned to advocate for myself. I've eaten nuts a few times since I hit college and my mouth got super itchy. Oh, and bug bites. I'm allergic to those. Whatever part gets bit swells up huge. And bee stings, they get swollen and hard too. Apparently I'm a delicate little flower. heh.<br /><br />I'm sure you saw me at BlogHer, quizzing the catering people about everything. When in doubt I just don't eat it.Mollyhttps://www.blogger.com/profile/15881590483174001768noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-50647075268560005132011-02-04T19:01:24.534-05:002011-02-04T19:01:24.534-05:00My kids don't have allergies (thank God)but I ...My kids don't have allergies (thank God)but I DO have a tip for you. I found a company that makes temporary tattoos for special needs kids. They actually make a non-verbal autism tattoo AND food allergy tattoos.I was tempted to get them for my youngest when he was still non-verbaldue to a speech delay.<br /><br />http://www.mypreciouskid.com/products/special-needs-children-products.htmlsarahhttps://www.blogger.com/profile/01751389029725410849noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4075449942529029732011-02-04T18:11:00.509-05:002011-02-04T18:11:00.509-05:00We discovered one sons's by accident. Like Hol...We discovered one sons's by accident. Like Holly, I nursed my son and he puked. Constantly. So I eliminated stuff for reflux. One day he picked up a goldfish cracker and ate it, puke two minutes later and his lips swelled. The younger one is allergic to wheat which we discovered because he craved it so much and his bowels were always a mess. Turns out they are both allergic to soy, too. Not surprising. I am allergic to nuts, legumes and soy and their dad and I are allergic to seafood. So we are very careful now!Domestic Goddesshttps://www.blogger.com/profile/05034924702019610611noreply@blogger.com