tag:blogger.com,1999:blog-401303964563152307.post5774886574663920857..comments2024-03-17T12:02:12.410-04:00Comments on Love That Max : I did not cryEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-401303964563152307.post-15343657978977425842011-08-19T09:12:50.509-04:002011-08-19T09:12:50.509-04:00Full disclosure: I cried reading the comments. On ...Full disclosure: I cried reading the comments. On the train to work, looking like an idiot. All of you mothers are lionesses. Your kids are lucky to have you.Cindy Hamiltonhttps://www.blogger.com/profile/13331847216412252979noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-68274451636500198582011-08-17T21:03:15.609-04:002011-08-17T21:03:15.609-04:00I used to cry every time I heard someone was pregn...I used to cry every time I heard someone was pregnant...especially with a girl. But I don't anymore!!!Tiffanyhttp://www.elastamom.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-12986760785326400992011-08-16T10:42:42.987-04:002011-08-16T10:42:42.987-04:00awww....xoxawww....xoxMeriahhttps://www.blogger.com/profile/13813502666724137451noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-43706202618581268012011-08-16T09:33:39.159-04:002011-08-16T09:33:39.159-04:00Full Disclosure: I cried reading this. It's fr...Full Disclosure: I cried reading this. It's frustrating when you see happy healthy kids with parents that really don't care about their kids too. That really gets me down.jenniehennhttps://www.blogger.com/profile/16198158689830449744noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-82791388277883191162011-08-16T03:09:25.825-04:002011-08-16T03:09:25.825-04:00Would that I could think I wouldn't cry. Or t...Would that I could think I wouldn't cry. Or that in the safe and friendly times I would cry. My emotions in this regard are an awful lot like a yo-yo on a twisted, knotted string.GingerBhttps://www.blogger.com/profile/09976594257345428901noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-55791857367414197412011-08-16T00:22:13.640-04:002011-08-16T00:22:13.640-04:00Dear Ellen!
Please do not feel "sorry&q...Dear Ellen!<br /><br /> Please do not feel "sorry" for ~helping ~me to cry. Surely, I am not alone in a feeling of Catharsis; you freely Gifted catharsis to so many people this Day...I am a Mother; I am a Woman; I love when a special person helps me to cry, as I often bang my head against the Wailing Wall, so to speak, when all I truly need, in order to move on with this exciting Life, is a Good Cry.<br /><br /> Thank you from our Hearts, from this little British-American family, including our little Leo, genetically enhanced with his extra special chromosome) Much love to you & your angels, CherylFaith, Robin (British hubby, my SoulMate), who is Daddy of Leo, 7, our amazing little kid, who happens to have that extra chromosome. Love you, angel Ellen!<br /><br />ps I don't have a "Mommy Blog," per say...& I often feel guilty about this. May I direct you, then, to a couple of Advocacy posts within my online WordWorkshop?<br /><br /> You & your family live in my Heart & my eclectic prayers, Ellen. In my Life, you are a rare & precious Jewel. <br /><br />http://thedalove18.blogspot.com/2011/07/friends-guide-how-to-speak-to-parent.html <br /><br />http://thedalove18.blogspot.com/2011/07/princess-of-long-island.htmlCherylFaithhttps://www.blogger.com/profile/15121036390239719399noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-25887834273451212862011-08-16T00:01:42.972-04:002011-08-16T00:01:42.972-04:00This is a huge step for you! As always, many praye...This is a huge step for you! As always, many prayers <3Team Carter Jayhttps://www.blogger.com/profile/00364088148612828851noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88076217294336609212011-08-15T23:48:51.397-04:002011-08-15T23:48:51.397-04:00I think it's really kind of like a post trauma...I think it's really kind of like a post traumatic stress disorder. Something happened to us to totally shift our world. We're ok, but every once in awhile something just grips your gut and you remember. My husband and I also have a picture we took to be our portfolio picture for the adoption agency. We are so happy and hopefull. My husband can't even look at it because that was how we were before Kyle. It's painful to see all the hope and possibility. We love Kyle totally, but sometimes love doesn't make the day to day any easier. <br />Julie CAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-15490513658232878522011-08-15T22:22:48.009-04:002011-08-15T22:22:48.009-04:00I have been reading your blog for a couple of mont...I have been reading your blog for a couple of months now and love it. I had to comment on this because I could have written it myself. It's hard for me to see happy pregnant moms and with no worries. My son is only 2.5 but after 4 surgeries countless specialist visits and weekly therapies it is still hard... We still dont know what we are dealing with which makes it hard but not as much as in the beginning. I try to push it down and have become pretty good at that. Thank you for sharing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-71227096817189079332011-08-15T21:43:27.691-04:002011-08-15T21:43:27.691-04:00Thanks for the kind words, all. I'm sorry to m...Thanks for the kind words, all. I'm sorry to make some of you cry.<br /><br />Lisa, I think you are very right. And Jean, yes, it really is complex how and when things get to you—"there is no line," indeed.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-75257973691657394042011-08-15T20:29:27.516-04:002011-08-15T20:29:27.516-04:00Thanks for making me cry! You give me hope that I...Thanks for making me cry! You give me hope that I will be there too someday!Wherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70038359672205874992011-08-15T18:27:54.574-04:002011-08-15T18:27:54.574-04:00Max is still all full of potential. He's just ...Max is still all full of potential. He's just gonna take a different route to get there. I mean, someone needs to develop and market a line of purple spaghetti. And the hyper-organised woman who was investigating preschools and bathtubs is the same one who investigates therapies and makes sure that everyone eats and usually wears clean clothes and makes it to 100 million appointments. Thank god for her. :)<br /><br />That said, I think grief will probably hit you in different ways your entire life - just less frequently and hopefully less intensely as time continues to march on.Lisahttp://www.booboomagoo.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-29622502396949300892011-08-15T18:25:19.402-04:002011-08-15T18:25:19.402-04:00There is a particular picture of Benjamin and me, ...There is a particular picture of Benjamin and me, taken less than an hour after he was born, before the doctor told me about his Down syndrome, that I have very mixed emotions about. My face is so full of happiness and pure joy and innocence. I long for that girl sometimes. The one who hasn't had 3.5 years of surgeries, illnesses, and shattered dreams. But then again, I wouldn't have my precious B. <br />But I get it.<br />Full disclosure: I also cried while writing this.Angelahttps://www.blogger.com/profile/11387011004798871747noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4224701005281838162011-08-15T17:29:22.812-04:002011-08-15T17:29:22.812-04:00Beautiful, Ellen. I cried just reading it. I thin...Beautiful, Ellen. I cried just reading it. I think that any woman who's had a child with any health issues could relate.sugarmagnolia70http://sugarmagnolia70.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-37351726431105166812011-08-15T15:03:06.269-04:002011-08-15T15:03:06.269-04:00Oh Ellen! I cried as I read your post because I s...Oh Ellen! I cried as I read your post because I still have these feelings. It is difficult for me especially to see pictures of healthy twins or meet women who tell me they are expecting twins. I also go back to moments in time during my pregnancy before my whole world fell apart.<br /><br />In fact, yesterday for some reason my mind travelled back to a day in December 2008 (a few weeks before the twins were diagnosed with TTTS). My friends and I were at a restaurant and we noticed Gene Simmons sitting at a table near us. My girlfriend (who was also pregnant) and I went and asked him for a picture. He joked that he was not responsible for either of our pregnancies. I still have the picture and I remember that day so clearly - I was happy and excited about the babies arrival. I was totally unaware that anything could go wrong and all I knew is that I was going to have two healthy twin baby boys.<br /><br />I am so proud of my boys and how far they have come - they have completely surpassed the doctor's expectations and they will continue to do so. But there are those days when I still feel sad about what could have been. I hope one day I can look at a picture of my pregnant self and not cry. Thanks for writing this.Jennyhttps://www.blogger.com/profile/16213590209738598377noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-61034444915836762862011-08-15T12:47:01.468-04:002011-08-15T12:47:01.468-04:00Oh my gosh. Somewhere on specialneedsmom.com I wro...Oh my gosh. Somewhere on specialneedsmom.com I wrote a blog post called. See My Cry Everywhere! Parent Teacher Conferences, Field Day- talent shows where the typical and the exceptional convene with vast contrast front and center state, too big to ignore. <br /><br />I see infants so perfect, still pink and want to warn the blissfully unaware new moms by saying " Don't take this for granted" <br /><br />After Zoe had already been diagnosed with mitochondrial disease, and generalized epilepsy and other add ons- her annual MRI at age 5.5 showed she had suffered from a SLE. No functionality was lost, but there was evidence by the damage shown on the MRI. Something that scares you almost into forgetting- FOCUS on the progress, the functionality- and leave the clinical data to someone else.<br /><br />How wonderful you have moved on to meeting the challenges of today and celebrating the victories! Yeah ELLEN!SpecialNeedsMom.comhttps://www.blogger.com/profile/02972383475867093667noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-13745580829456094102011-08-15T12:46:34.980-04:002011-08-15T12:46:34.980-04:00It's funny when and why the hard emotions hit ...It's funny when and why the hard emotions hit us. And, even harder, it doesn't go in a straight line. This was such an honest and lovely post. Thank you for sharing your emotions.Stimeyhttps://www.blogger.com/profile/09685801693683588805noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2681357038935216522011-08-15T12:46:28.176-04:002011-08-15T12:46:28.176-04:00update: After I posted here, Ellen, I called Robin...update: After I posted here, Ellen, I called Robin at work to share your post with him. I broke down then...I guess I needed you...Robin became very quiet for a Moment, in the midst of whirring computers & working-Day insanities...I believe he may also have shed a cathartic tear or two. Thank You for all you do, Ellen. You & Your beautiful Family are always in our Hearts, CherylFaithCherylFaithhttps://www.blogger.com/profile/15121036390239719399noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87000520700794033682011-08-15T12:30:28.942-04:002011-08-15T12:30:28.942-04:00Yes, the same thing happens to me. I see someone ...Yes, the same thing happens to me. I see someone pregnant or see a newborn and I just get misty. It's hard. I understand.Rebeccahttp://landlock-mo.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-40624704577395683162011-08-15T11:55:44.154-04:002011-08-15T11:55:44.154-04:00You did not cry, but you made me weepy!!You did not cry, but you made me weepy!!Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-296966271480257082011-08-15T11:51:11.034-04:002011-08-15T11:51:11.034-04:00I still have trouble seeing babies so I know what ...I still have trouble seeing babies so I know what you mean.Wendyhttp://www.cafemom.com/home/aidensmomma508noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88976814338889531342011-08-15T11:34:03.245-04:002011-08-15T11:34:03.245-04:00Hugs
Max and Sabrina are great kidsHugs<br /><br />Max and Sabrina are great kidsK.E.'s EOS fighthttps://www.blogger.com/profile/15059533959365954175noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-6860503528527858102011-08-15T11:28:59.555-04:002011-08-15T11:28:59.555-04:00I love your blogs!! This one brought tears. Most t...I love your blogs!! This one brought tears. Most things you post bring up exactly how I feel at times. My son is only 2, so I'm still kind of in the grieving process. I've faced most of my grief, because, and I'm sure you know this, as the mother I had to step up and face reality from the beginning. But I still have my moments. Thanks for sharing!!Shannoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-1836473169117935472011-08-15T11:14:17.836-04:002011-08-15T11:14:17.836-04:00Thank you for putting this into words.Thank you for putting this into words.Anniehttps://www.blogger.com/profile/02377379882410723771noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88346270446827683152011-08-15T10:42:34.252-04:002011-08-15T10:42:34.252-04:00I'll admit that I'm jealous of pregnant wo...I'll admit that I'm jealous of pregnant women, remembering the ignorant happiness I felt having William in my tummy. Then my world crashed. Every time I see a pregnant women...I wonder if she is in ignorant happiness and may be having a sick child, or if she will appreciate having an healthy child and not take it for granted as I see some parents do. Maybe it's easier for me to put my feelings secretly onto other strangers than to deal with my own emotions. Thank you Ellen for always putting things into perspective!WilliamsMommyhttps://www.blogger.com/profile/07523607154801921779noreply@blogger.com