tag:blogger.com,1999:blog-401303964563152307.post5699309941662895710..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : Treatments for cerebral palsy and other astounding newsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-401303964563152307.post-10207881291679659692012-06-04T15:35:46.897-04:002012-06-04T15:35:46.897-04:00Our daughter was born full-term with no complicati...Our daughter was born full-term with no complications at birth, so the cause of her brain damage and resulting CP is unknown. Our pediatrician suggested genetic testing. We're currently awaiting results. I think there needs to be more education surrounding the genetic component. I'm glad you included it in your post.Jillhttps://www.blogger.com/profile/07726191062135153582noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-76624683060575089382012-05-19T01:22:10.792-04:002012-05-19T01:22:10.792-04:00I agree with Tina on the video games as therapy th...I agree with Tina on the video games as therapy thing--they do the trick when your insurance only goes so far (to say nothing of keeping kids busy while you're trying to get dinner on the table!). This is a great topic -- I find the mutation theory totally believable, not that I am a scientist or anything. You've got to figure that with all the crap in the food, air and water, we're still under attack constantly even with better access to medical care and more understanding of health issues.Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77037974610842494972012-05-17T16:26:12.100-04:002012-05-17T16:26:12.100-04:00We're a group that provides resources for fami...We're a group that provides resources for families of those with cerebral palsy. Many parents are concerned about sending their children to summer camps. Fortunately, there are at least 32 summer camps that can accommodate children with CP. Find out more <a href="http://www.cpfamilynetwork.org/blogs/is-summer-camp-in-your-child%E2%80%99s-future" rel="nofollow">here</a>.CP Familieshttp://www.cpfamilynetwork.org/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-76604787454606096362012-05-17T15:42:37.737-04:002012-05-17T15:42:37.737-04:00What an interesting post! Thanks for sharing the r...What an interesting post! Thanks for sharing the research on the causes of CP. The research into the different causes (and how to tell the cause in a particular patient) is very interesting and important. One thing I want to mention is that that article makes it sounds like oxygen deprivation or traumatic birth aren't real causes because the rates of CP have held fairly steady over time. That's just not true--the rates of CP have held steady in part because in the US we've gotten better and better at saving the lives of very premature babies. Babies who used to die now survive--but some develop CP, which has kept the overall rates of CP up even though there are fewer instances of CP caused by traumatic birth (because medical care has improved). The efforts to reduce the risk of oxygen deprivation during childbirth are still very important. But I'm so glad there is research into other factors (environmental exposure, genetics) as well.Katehttp://www.littlelegal.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-43374136651843597932012-05-17T09:39:45.599-04:002012-05-17T09:39:45.599-04:00With our daughter who died just 3 days after birth...With our daughter who died just 3 days after birth we knew she'd had the brain injury (bleed) a couple of days prior to delivery so she wouldn't have ever made it down the birth canal because of all the swelling on her brain, she wouldn't have fit. We were fortunate to have picked up the bleed otherwise it would have been put down to birth trauma and subsequent death and bleed as a result of birth trauma... she provided huge insights to the medicos that a brain injury prior to delivery could cause the traumatic birth... not the other way around. We had a c-sect so we could see how she fared - sadly her injury was too great for her to survive. Glad to see some good research happening out there - been feeling like things have been a bit blinkered for a decade or so.Gina @ Inky Ed!http://inkyed.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-51549641493527291902012-05-17T09:30:13.774-04:002012-05-17T09:30:13.774-04:00Thanks for mentioning Elaine's work!! We have ...Thanks for mentioning Elaine's work!! We have also found benefits in use of Wii for kids with amputations who are relearning to walk and balance with artificial legs.BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-71756457457935815782012-05-17T09:07:16.079-04:002012-05-17T09:07:16.079-04:00Great info! The genetic connection puzzles me sinc...Great info! The genetic connection puzzles me since my twins are identical. One has CP and the other doesn't. I think they would be great research candidates! I'm also encouraged by the rabbit research!Ali@ Super Mario Twinshttp://www.supermariotwins.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-76688154511991974352012-05-17T08:35:13.641-04:002012-05-17T08:35:13.641-04:00Interesting - I love reading studies/research like...Interesting - I love reading studies/research like this! My daughter's CP is a big unknown (and it's the "rare" kind, so that makes it even trickier) - the best guess from most of the doctors we've seen is that something happened very early on in utero, but I've always wondered just WHY. We'd declined genetic testing, but now I'm thinking maybe we'll go for it when she's old enough to give her own consent. Thank you for this post!!!Marlahttps://www.blogger.com/profile/16809949267562980590noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-941924474477830832012-05-17T08:27:40.704-04:002012-05-17T08:27:40.704-04:00We have used Wii and Xbox Kinect for years now (Ki...We have used Wii and Xbox Kinect for years now (Kinect, more recently) to promote fun physical therapy for our twins (now 6 1/2). One has mild CP and the other had some fine motor issues and also has ADHD... :) win win for us... one kid burns up the energy, the other gets free physical therapy!!! :):)Tina Kewyhttps://www.blogger.com/profile/05838178801413861116noreply@blogger.com