tag:blogger.com,1999:blog-401303964563152307.post5415548470627050608..comments2024-03-17T12:02:12.410-04:00Comments on Love That Max : 15 superpowers of special needs momsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger54125tag:blogger.com,1999:blog-401303964563152307.post-45743078287306881252018-02-10T15:50:14.792-05:002018-02-10T15:50:14.792-05:00Why "Special Needs Moms" though? I know...Why "Special Needs Moms" though? I know women get a raw deal in every sector of society. But I am a "Special Needs Dad" who adopted a child who was in the foster system for nine years and who had every problem life could throw at him. I was, and am, single. Our epic struggle began before I even met my son, as society has multiple and ongoing suspicions of an unmarried man who wished to be a parent. It is perhaps the one place where women have a distinct advantage. When I was finally able to adopt, like all people who parent special needs children, I became a captain, a navigator, an advocate, a wall, a nurse, a chaplain, a soldier, a night watchperson, a teacher, a cook, a friend, a critic, a sentry, a tailor, and, oh, yes, a dad. Make no mistake, I had my village. Some of the village I built, some of it willed itself into existence when my mom and some special friends circled the wagons. I was never a superhero. I was super-concerened, super-exhausted, and in the end, super-proud. But never anything special.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-90720211388160510372017-03-07T21:26:28.043-05:002017-03-07T21:26:28.043-05:00Omg this so true. One day your a hero because you ...Omg this so true. One day your a hero because you eased their books boos made them unscathed of test you yourself fear results but put on that hero face showing none of your true emotions. Your the champion as you know them best when facing the IEP . Your there her when they finally meet a milestone that others would say it will never happen. I'm putting this on fridge for the bad days. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-68186274721873795322015-12-07T08:43:46.120-05:002015-12-07T08:43:46.120-05:00My son is also very very obsessed with them! I tho...My son is also very very obsessed with them! I thought I was definitely the only one out there with a child that had such a "strange" obsession.. He draws them, says some are cute and some baby ones, some are big ones and has honestly recognized when a new one was put in in a neighborhood we only go to once a week haha glad I'm not alone! Anonymoushttps://www.blogger.com/profile/14152469950089757963noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-52678698338142333822015-06-11T20:34:11.581-04:002015-06-11T20:34:11.581-04:00I had the great pleasure of being a friend of a Mo...I had the great pleasure of being a friend of a Mom of two special needs mom. She was a wonderful human being and Mother. Many people would have been crushed but she took it all in her stride. She was all the things you listed and more. She was and is my hero.Elva Robertsnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-79931930014020583922014-11-17T19:32:55.946-05:002014-11-17T19:32:55.946-05:00I Love this list! Kudos to all of you special nee...I Love this list! Kudos to all of you special needs mamas! And I love the comment from "Thor Ben" acknowledging that these superpowers also belong to the siblings of our special needs kiddos. All of my kids have stood back during several emergency situations where their needs to a serious back seat to my son's life threatening condition. My daughter has probably gone through the most - she has the greatest superpowers ever! Diane Adamo Casselliushttp://5littlemonkeys.menoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-10982046104838922592014-07-25T16:05:08.516-04:002014-07-25T16:05:08.516-04:00Yeah, the Moms? Right. You forget about the dads a...Yeah, the Moms? Right. You forget about the dads all the time. Everyone forgets or simply thinks it's just a woman-thing to take care of a special needs child and the man is working or left for good. I'm not leaving nor writing about what I saw the last two years while taking care day and night, in and out of hospitals, up to the sky, down to the earth core. I'm not crying because dads are never mentioned, but sometimes it is just annoying. My wife has got superpowers for real, I respect that, I see it. But the most superpowers belong to my daughter who survived the most critical situations and fought for now nearly three years showing everyone that nothing can defeat her. Well, I know that is not true, but together we live this dream. What else do we have, if not optimism and the power to go one. So keeping the optimism is a superpower everyone of us needs. Thor Benhttp://www.kaiserinnenreich.denoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-53227073694889341752014-05-25T16:00:50.131-04:002014-05-25T16:00:50.131-04:00Angela I really don't agree. There is no such ...Angela I really don't agree. There is no such thing as a superhero. The idea that a mom of a kid with special needs is a "superhero" is nonsense. In fact I will go one step further and say that is a dangerous thing to believe. <br /><br />Dangerous because it tells moms to typical children that we are all "superheroes". Myths like that ignore the moms with kids with special needs who bully them as well. We must not fall into the trap of believing crap like that. <br /><br />Just because I have a baby with spastic diplegia does not mean that I'm a "superhero". No I'm just his imperfect but trying my best mom. Hollynoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-71193889420888441632014-05-24T19:06:31.544-04:002014-05-24T19:06:31.544-04:00Love this list! I have a 9-year old girl with spec...Love this list! I have a 9-year old girl with special needs and I consider both of us superheroes! She is the most hard working, tenacious girl ever and being her mother makes me that much stronger as a woman. Yay, I'm a superhero! Anonymoushttps://www.blogger.com/profile/02473007682040893951noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-37278548754116485932014-05-14T10:35:10.951-04:002014-05-14T10:35:10.951-04:00hi your all superheros. iam 51 moms 86 she still ...hi your all superheros. iam 51 moms 86 she still helps me ,I help her<br />I have multiple learning disabilities,adhd, thought disorder bipolar cant hear good,aniety disoders ptsd. im on meds now for 14 years and people are just now helping me plan for the future conventional one, but off grid,eco friendly homestead ,mini technofarm and alternative energy and earthbag cabin,log cabin trailer should work very well<br />I will be trying to get my 86 year old mom to meet you all , god bless you all for what you do for your families and each other if your an agsostic etc I respect your belifs .<br /> it hurts mne to no end that I cannot do more for mom but I tryAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-17826477354790742772014-05-12T20:25:05.024-04:002014-05-12T20:25:05.024-04:00Loved these! Today I really needed to hear them af...Loved these! Today I really needed to hear them after my son screamed for 30 minutes because I took away the broken glass I mean his toy. I love having SN mommy friends. It's nice having people around who get it! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-17353134632907700552014-05-12T14:41:49.891-04:002014-05-12T14:41:49.891-04:00Loved this - shared it on facebook. Thank you for...Loved this - shared it on facebook. Thank you for the laugh - all so true! What great a great sisterhood we are as the mothers of special needs kiddos. Just when I feel lonely in my struggles, I find a blogpost like yours. Brightened my day and lit my fire to head into the rest of my day!Elizabethhttp://www.thepantryproject.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-11393257534836295672014-05-10T23:25:38.910-04:002014-05-10T23:25:38.910-04:00As a special ed volunteer and speech therapist in ...As a special ed volunteer and speech therapist in training, I can say with full conviction that mothers of children with special needs are some of the most kick-A women you could ever meet. It takes a heck of a lot to do what they do, but they rise to the occasion splendidly.Anonymoushttps://www.blogger.com/profile/05224663472437840133noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-18326740702828507292014-05-10T11:16:04.071-04:002014-05-10T11:16:04.071-04:00*wet not were - oily!*wet not were - oily!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-43491582341469662582014-05-10T11:15:04.386-04:002014-05-10T11:15:04.386-04:00OMG I'm laughing so hard I were my pants.........OMG I'm laughing so hard I were my pants...... in isle 8 : )Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-26025842180249569872014-05-10T11:13:45.409-04:002014-05-10T11:13:45.409-04:00amen to that!!!!amen to that!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-42619285411591850992014-05-10T10:57:42.489-04:002014-05-10T10:57:42.489-04:00You lists are always a fun read. As I was going th...You lists are always a fun read. As I was going through this one though, I couldn't help but think that most of these apply to ALL parents, regardless of whether or not their child has a special need. I know many of my friends who in fact have far MORE patience than I do, even though their children are typical. Sometimes I worry that as special needs parents we set ourselves apart too much, when we're really just like everyone else, ya know? We may have different circumstances but we still lose our tempers, we still get flustered, we still snap at our kids sometimes (at least I do!), and we certainly aren't super all the time. At least I'm not! :)Mary Evelynhttps://www.blogger.com/profile/03391350462599128358noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-71962678430866219812014-05-09T18:00:14.510-04:002014-05-09T18:00:14.510-04:00I love this list!! And it's all true. Nobody ...I love this list!! And it's all true. Nobody can understand a special parent like another special parent.<br />Hugs to all the superheros out there ((((hugs))))Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35657393055042824482014-05-09T16:32:15.040-04:002014-05-09T16:32:15.040-04:00I am fortunate that all the professionals in our s...I am fortunate that all the professionals in our son's 18 month journey with ST and OT have been amazing. His speech therapist at school rocks, big time; so does his current kindergarten teacher, who has known our son all his life. We know his kindergarten teacher next year will rock too, as the school principal, the current teacher, and the speech therapist all independently recommended this teacher for our son. I dread the day we can no longer chose his teachers (since he's considered special needs with his speech, we get currently to).Stacey Nicolehttps://www.blogger.com/profile/14352989875183758588noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-39380222264884472932014-05-09T16:26:00.846-04:002014-05-09T16:26:00.846-04:00Spot on, all of it, but these hit me hard:
#7: to...Spot on, all of it, but these hit me hard:<br /><br />#7: today was field trip day at my son's school. Plans were a miniature horse farm then a bounce house place. Thomas was ecstatic about the horses, not so much about the bounce houses. There was a change of plans yesterday to where the horse farm was replaced with an outing to see Rio 2. Oh great. Thomas wasn't as upset as I thought he would be, but while he loves movies (this was his third to see in the cinema since December), he doesn't like the whole experience of getting to his seat and sitting in it. He did, though, surprise me and go in a bounce house. Granted, it was an empty one and he went in it with his teacher, but holy cow, the kid did it! We stopped going to birthday parties because every single one has a bounce house, and instead of playing, Thomas would cling to me like a tick on a dog, which leads to...<br /><br />#11. Oh man, this is oh so true. We had an outing at church last Saturday, a small cook-out. I spent the entire time not socializing like I had hoped (being a SAHM, I NEEDED that interaction), but watching Thomas play in a little patch of grass away from the other kids. We have another cook-out/big get together at church tomorrow, complete with, you guessed it, bounce houses. We debated not going, but it's not fair to Thomas' little brother, who has no fear, to miss out. It just sucks, and hits hard, feeling like a wallflower and wishing like hell that once, just once, your kid could be more like other kids. I hope that doesn't make me selfish. :\Stacey Nicolehttps://www.blogger.com/profile/14352989875183758588noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-15669213132434304032014-05-09T13:53:27.661-04:002014-05-09T13:53:27.661-04:00I love this so much. I wish I could force certain ...I love this so much. I wish I could force certain people (cough *family* cough cough) to read it so they would have a clue what we go through :(misspetthttps://www.blogger.com/profile/16796640412040450215noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-32999615544293574802014-05-09T12:18:48.930-04:002014-05-09T12:18:48.930-04:00Love it described me very wellLove it described me very wellAnonymoushttps://www.blogger.com/profile/17489897999756481437noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-66141805670117214272014-05-09T11:41:06.593-04:002014-05-09T11:41:06.593-04:00Yes, yes, yes, all true. Also, we know almost inst...Yes, yes, yes, all true. Also, we know almost instantly when we meet a professional the first time if they are a person who can get things done. We don't have time to waste on people who don't, so we reserve it for the ones with the power and the will.Adriennehttp://www.nopointsforstyle.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-73074360226052180132014-05-09T10:57:14.624-04:002014-05-09T10:57:14.624-04:00I wish it was a telephone pole obsession here. No...I wish it was a telephone pole obsession here. Nope I have to be stuck with WWE. Please help! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35554566654025080112014-05-09T09:10:38.589-04:002014-05-09T09:10:38.589-04:00Thank you! Yes, I believe that's what it says ...Thank you! Yes, I believe that's what it says on Cora's chart as well. ;) I've been reading your blog since before I was even pregnant, and it's amazing how much of what you've written has stuck with me through all of these new experiences I'm having now!EPRhttps://www.blogger.com/profile/15588221904941479593noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88425323021956128462014-05-09T09:10:07.017-04:002014-05-09T09:10:07.017-04:00I didn't cut my hair for 3 years and was then ...I didn't cut my hair for 3 years and was then able to donate it..so maybe you are on to something ;) stay strong..happy mothers day :)Anonymoushttps://www.blogger.com/profile/08000499333247486106noreply@blogger.com