tag:blogger.com,1999:blog-401303964563152307.post4400520006008581745..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : You never forget the really kind doctors (or the not-so-kind ones)Ellen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-401303964563152307.post-38858780488564082182018-03-04T20:32:42.231-05:002018-03-04T20:32:42.231-05:00My daughter Emily was born very premature. Weighe...My daughter Emily was born very premature. Weighed only 14 ounces at birth & she lived her first 6 months in the NICU, you can imagine we encountered many different types of doctors. So I understand exactly what you are saying, we always appreciated the doctors who were realistic but hopeful with us. We did have those doctors we almost... hated, and who quite frankly my husband wanted to punch. Those that said what they said without feeling & quite frankly without any hope. I try hard to remember that even those doctors we didn't like had a hand in her life. It helps me. We also had the doctors we LOVED, like the one who included me in the circle discussions with interns & residents they had during AM rounds, and who said, " Ok, Mom... what do you think?" Or the transport doctor who original had to tell us the darkest of things but then added..... "We will do our damnedest for her" Or the nurse who <br />weeks after her birth simply said, "Congratulations!! She's beautiful" It was amazing that no one had said that... it was all just doom & those words & the way she said them. I still remember. It's been 17 years, and I still remember it like yesterday. Emily... BTW is a junior in HS and is looking forward to being in her HS's musical production of Beauty and the Beast... and is amazing. Just like your Max & his brother and sister. Manic Missyhttps://www.blogger.com/profile/17490103046063945874noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70927506046237986052018-03-01T17:49:43.398-05:002018-03-01T17:49:43.398-05:00Beautiful. As always.Beautiful. As always.Anonymoushttps://www.blogger.com/profile/07930796856020938418noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-22956422151191546262018-03-01T08:57:30.410-05:002018-03-01T08:57:30.410-05:00Thanks for sharing. You are right -- parents need ...Thanks for sharing. You are right -- parents need hope. We also need time to absorb. Sounds like Dr. Gold has set a standard that doctors should follow. I remember the first time I took Luke to a ped neruo - the appointment started out with the doctor coming to the waiting room to get us (good!) and saying something similar to "Lucus (his name is Luke) you have grown so much since I last saw you!" Then there is the doctor who said Luke had severe mental retardation. The cleft team orthodontist who has NEVER addressed Luke. Funny how we can remember the bad ones. But fortunately they good have far outweighed the bad. I love all of the doctors, nurses, technicians, and receptionists who patiently wait for Luke to communicate with his iPad. The ones who make a point of reminding me what a great guy he is. The pediatrician who never gets upset with how many sick appointments we have because we need to keep on top of things and Luke can't tell use. Janetnoreply@blogger.com