tag:blogger.com,1999:blog-401303964563152307.post4328451271463888159..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : The progress I never think about (that happened on its own)Ellen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-401303964563152307.post-75108993573333719562011-06-02T09:18:39.744-04:002011-06-02T09:18:39.744-04:00That's where I can get really excited about Ol...That's where I can get really excited about Olivia's progress...when I think about her emotional progress. :)Tiffanyhttp://www.elastamom.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-83383828307783285572011-06-01T21:24:44.916-04:002011-06-01T21:24:44.916-04:00Way to go Max!
FYI- Botox in my daughter's sa...Way to go Max!<br />FYI- Botox in my daughter's salivary glands didn't do well enough and I asked the doctor to increase the dose. He is going to do 50% more in a couple weeks for our second try. We'll see if this does the trick!Anonymoushttps://www.blogger.com/profile/08008275331445301888noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-23169745549506895662011-06-01T21:16:57.320-04:002011-06-01T21:16:57.320-04:00Alison, I hope the AFOs do their job! Julie, I had...Alison, I hope the AFOs do their job! Julie, I had purple tape success! Mo, headed over to say hello. And you know what? Hopefully, this will mean BETTER walks in the park for both our kids.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80428785366306057032011-06-01T16:37:06.705-04:002011-06-01T16:37:06.705-04:00You're geared up for serial casting... we'...You're geared up for serial casting... we're on the eve of lengthening surgery. Right leg too. Best of luck with the casting, it took some time for our daughter to rebound after the casts came off. I have no idea what recovery for this surgery will be like but I'm sure its not going to be a walk in the park. But what do ya do??Mohttps://www.blogger.com/profile/10083710958029714414noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-39888101999147025622011-06-01T14:44:59.591-04:002011-06-01T14:44:59.591-04:00Giant leaps forward and a few steps back. :)Giant leaps forward and a few steps back. :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-92190367221244062742011-06-01T12:39:11.631-04:002011-06-01T12:39:11.631-04:00I'm glad you found purple tape. i was going to...I'm glad you found purple tape. i was going to recommend checking a craft store. They have some pretty wild colors of duct tape for crafts these days. I bet they'd have purple. Kyle has some black duct tape with yellow flames that he loves. Regarding the drooling...Kyle tried botox twice and it didn't really help him as much as we'd hoped. He's on .125 Benzptropine and I think it helps a little. Last Neurodevelopment appt one of the nurses said to try orange extract on a q tip in the four corners of the mouth. We haven't been too compliant with that, so I can't tell you if it works or not.Julie Cnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-22025406460044383172011-06-01T12:08:56.825-04:002011-06-01T12:08:56.825-04:00Thanks so much for posting this today! We just go...Thanks so much for posting this today! We just got the news that we'll need to go back to AFOs, even though I had hoped (!) that we were done with them. <br /><br />You really helped me to focus on the other things that my son does well. <br /><br />Perfect, Perfect, Perfect timing. <br /><br />Thank you!AlisonWillishttps://www.blogger.com/profile/17035611502760332845noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-1147804282726664912011-06-01T12:02:33.299-04:002011-06-01T12:02:33.299-04:00Barbara, I do think that raising kids with special...Barbara, I do think that raising kids with special needs is all about juggling their progress, their non-progress and recession. It's not that they tie in to each other; I'm talking about how you handle it as a parent. As Peggy says, "There's always good news/bad news." And, I will send along your congrats to Max!<br /><br />AZ, he is making progress. But our district is not the right place for him now. I am going to consider it for the following year. <br /><br />Hyper: Thank you for that hot tip on vet strapping tape! The pet store has it, in purple! (You should have heard my phone conversation with the store owner: "Do you have it? Good! Do you have it in purple? Will it work on a kid's cast?")<br /> <br />DDerby: His official name is currently Spaghetti Sauce Max. Purple Spaghetti Max is SO six months ago. <br /><br />Chelsea: I think that doctor does surgery that reverses the drool. I don't know if I'd go the surgery route now... Sigh. That's a whole other post. <br /><br />Anon: Mistakenly published that, it was shorthand! Intended hed now above.<br /><br />Megan: A-MENEllen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-39782812099062471572011-06-01T11:14:49.033-04:002011-06-01T11:14:49.033-04:00Progress... it's about all we can ask for.Progress... it's about all we can ask for.Meganhttps://www.blogger.com/profile/15049341972075281915noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-75950071682156167702011-06-01T11:08:42.272-04:002011-06-01T11:08:42.272-04:00I really give very little thought to emotional mat...I really give very little thought to emotional maturity either. Max is 3 years older than my son so it's encouraging to read along as Max moves further. Looking forward to the day that my son gets upset when he is being told he is misbehaving. Well, I guess he already doesn't like that, but it doesn't mean that it stops him at this point.<br /><br />Loved the "g" and "green" story and Max unpacking your bags.Juliehttps://www.blogger.com/profile/07455406635932299888noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-29720720081353145222011-06-01T10:56:57.335-04:002011-06-01T10:56:57.335-04:00Why did you entitle today's entry, "Paren...Why did you entitle today's entry, "Parenting special needs..." rather than "Parenting children (or kids) with special needs?" I am not trying to criticize you; I really would like to know.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-68747190806191517782011-06-01T09:26:08.906-04:002011-06-01T09:26:08.906-04:00I remember reading on his website that Dr. Nuzzo i...I remember reading on his website that Dr. Nuzzo in NJ does something with the issue of extra saliva. We met him for SPML only so I don't have the details. He's weird but that brilliant sort of weird.chwhttps://www.blogger.com/profile/18126229176979774280noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2688985793875417172011-06-01T08:48:43.184-04:002011-06-01T08:48:43.184-04:00I am the mom of a soon-to-be-17 boy with autism, a...I am the mom of a soon-to-be-17 boy with autism, and I read your blog faithfully. There's always good news/bad news, isn't there? We are AWESOME moms!Peggy Monahannoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-20284052494226482702011-06-01T06:34:03.018-04:002011-06-01T06:34:03.018-04:00That's how it goes and it is perfectly normal....That's how it goes and it is perfectly normal. We get one thing, something else takes a backseat for a little while. Well done to Max for beginning to read, that's fabulous.Penblethhttp://penbleth.co.uknoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48403606248291005202011-06-01T04:30:49.141-04:002011-06-01T04:30:49.141-04:00GREAT idea about the purple tape with the serial c...GREAT idea about the purple tape with the serial casting, Hyper!<br />Our hospital (UK) does purple casts and red and blue and pink I think and it really helped with Ashley's SC.<br />As to the progression thing, I think it's a part of all kids learning that they plateau and fall back in different areas (ask any teacher when the kids go back after summer break). <br />Purple Spaghetti Max is fabulous and adorable and definitely moving in the right direction :)dderbydavehttps://www.blogger.com/profile/07448901859808979140noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-3795863087843438982011-06-01T03:38:06.163-04:002011-06-01T03:38:06.163-04:00To purplefy Max's casts all you need it vet st...To purplefy Max's casts all you need it vet strapping tape!<br />It comes in a stack of colours (including purple) and it sticks to itself rather than anything else so you can keep on reapplying! <br /><br />I use pink vet tape to cover my wrist splint and make it fun and less medically scary when I'm working with my pre-schoolers. <br /><br />Just ask at your local vet or petshop - it's only about $4!EDS Warriorhttps://www.blogger.com/profile/00033215432772656875noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2753564792134191992011-05-31T23:34:38.494-04:002011-05-31T23:34:38.494-04:00Preach it, sistah, preach it!!!!!!Preach it, sistah, preach it!!!!!!Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-81451259012774219642011-05-31T22:12:19.296-04:002011-05-31T22:12:19.296-04:00I tell u ellen with all the progress max is making...I tell u ellen with all the progress max is making I think it is time for him to be in inculsive edAZ Chapmanhttps://www.blogger.com/profile/07649451111980332722noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-12392297127910748822011-05-31T21:34:09.531-04:002011-05-31T21:34:09.531-04:00Agreeing with Katy. (This time, okay?)
I'm n...Agreeing with Katy. (This time, okay?)<br /><br />I'm not so sure I agree that a few steps back is necessary or always, though. <br /><br />Paying attention to every detail of child development is, well, not typical, eh? We are bound to miss a step here and there while looking in another direction. Insofar as his foot tightening - I see that as unrelated to other developmental accomplishments - but tightening occurs with physical growth. Time for new support to his right foot? <br /><br />Big congrats to Max and you on his maturing emotional behavior! <br /><br />BarbaraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-51259841612230420622011-05-31T21:22:42.159-04:002011-05-31T21:22:42.159-04:00I love this post--it's beautiful and sums thin...I love this post--it's beautiful and sums things up so perfectly.Katyhttp://www.birdonthestreet.comnoreply@blogger.com