tag:blogger.com,1999:blog-401303964563152307.post3767545372852857962..comments2024-03-17T12:02:12.410-04:00Comments on Love That Max : That sad you feel when you think about your pregnancyEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-401303964563152307.post-27081804775228790572016-04-14T14:06:52.524-04:002016-04-14T14:06:52.524-04:00I still occasionally feel the same way. But I have...I still occasionally feel the same way. But I have no regrets about choosing not to abort my first pregnancy I was excited and still am. Like someone else said it is a gradual process that takes time. Your post really resonates with me. Hollynoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-47102827537026840262014-08-16T08:51:33.320-04:002014-08-16T08:51:33.320-04:00Thank you for this post. This past week we viewed...Thank you for this post. This past week we viewed the MRI and met with the neurologist to try to find some answers about my son who has very mild symptoms of cp. We saw scarring (thankfully, minimal) on his brain and were told it was likely a result of a stroke he had in útero. I've been struggling with guilt all week but not sure how to talk to my husband about it, who sweetly just tells me there's nothing I could have done. <br />But I still sit here going through every event in my pregnancy to find out what it was that caused his stroke. I worry that if I don't figure it out then my future children will have strokes as well. It's so strange because before they told us he had a stroke in útero I would have told you, other than some pretty bad morning sickness the first 18 weeks, I had a great pregnancy and birth. Now I pause every time I'm answering an expectant mom's questions wondering if they are thinking "but your son had a stroke". <br />I read a post you made last year about the mom guilt surrounding having a child with a disability and it really helped me to, at the very least, not feel alone. And echoed the confusion I feel when I obsess over this yet know that I would never change a single thing about my amazing son. Beccahttps://www.blogger.com/profile/13479163162397787412noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9719389254233234582014-08-14T23:22:07.969-04:002014-08-14T23:22:07.969-04:00Hey Ellen,
Thanks for this. Today is Elijah's...Hey Ellen, <br />Thanks for this. Today is Elijah's birthday, so I'm having a lot of "We couldn't have known" moments today. His birthday is always so bittersweet, so full of joy and happiness and yet, so full of such terrible memories. It's hard to have those two juxtaposed together. Hugs Lisahttps://www.blogger.com/profile/14597901803216176184noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-27867583383882939032014-08-14T19:02:42.369-04:002014-08-14T19:02:42.369-04:00I feel it every year at this time of year. The ai...I feel it every year at this time of year. The air is filled with spring blossoms in Australia and that takes me back to my pregnancy and I think of the young innocent girl I was just wondering if I'd have a boy or girl. I was happily clueless of what lay ahead. I'm a better person for my experience but I wrote a blog last year about my feelings. We didn't have a dramatic birth story our son's disability just unraveled over time. Here is my blog http://havewheelchairwilltravel.net/great-expectations/ Thanks for sharing. I think it is so important that parents understand it is okay for that feeling to wash over you sometimes. It is a process not something that just disappears with time. Julie<br />Have Wheelchair Will Travelhttps://www.blogger.com/profile/11766666910003140999noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-85632952212980549562014-08-14T18:54:02.703-04:002014-08-14T18:54:02.703-04:00I have a son with multiple disabilities and I can ...I have a son with multiple disabilities and I can relate so well to that feeling of "before we knew". I sometimes wistfully look at photos of I'm before we knew that he would grow up with special needs. He will be 15 years old in a couple of weeks. As the years have gone by the pain has lessened greatly and I no longer get teary. There is so much to celebrate; he's here, he's happy and he is greatly loved. Thanks for sharing your feelings. -Michele Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-41284895754551606332014-08-14T17:35:01.468-04:002014-08-14T17:35:01.468-04:00My nephew was born with a very rare neurological d...My nephew was born with a very rare neurological disorder. Rather, he was born a healthy 9 lbs, 2 oz typical baby boy who crashed within 48 hours of his birth and his life took a whole new path. <br />My sister, and our entire family, had about 40 hours with one baby only to be told, essentially, that that baby would never be. His life was not going to be the same as the life of the baby who was born...it is so hard to put this in words....how do you do it so wonderfully and I just make it sound horrible...? <br />No regrets or sadness over the boy who is, but we all had to take a moment in our lives to mourn the baby who had been born but who would never be. It is hard for outsiders to understand that.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-86113543798551068192014-08-14T16:36:24.798-04:002014-08-14T16:36:24.798-04:00Oh yes. This resonates. Thank you for sharing xoOh yes. This resonates. Thank you for sharing xoBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-57809376351936459732014-08-14T15:42:47.504-04:002014-08-14T15:42:47.504-04:00I know this feeling all too well... It is comforti...I know this feeling all too well... It is comforting to know I am not the only one who gets stuck on this.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-91397619854318224142014-08-14T15:30:22.861-04:002014-08-14T15:30:22.861-04:00Yes. Exactly yes. Because my pregnancies were pre ...Yes. Exactly yes. Because my pregnancies were pre term and therefore high risk. I never had the chance to enjoy full pregnancy, nor the baby showers given. All of my children were delivered early and went straight to NICU. We didn't have take home babies, we had wait a few weeks and then bring them home. I know, my friend. xo Alexandra Rosashttps://www.blogger.com/profile/03777115667216947996noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-28560747514390595452014-08-14T14:52:35.265-04:002014-08-14T14:52:35.265-04:00I know that feeling, too. When I meet someone that...I know that feeling, too. When I meet someone that I haven't seen for a few years and they ask how my son is doing I can get a little pang of sadness. I have to remind myself that 1) yes, it sucks, 2) it is what it is and 3) let's make the best of the situation. It's not always easy, but we get through it, don't we? Take care. Marthahttps://www.blogger.com/profile/11753354485401899017noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-47948625984941493352014-08-14T12:24:14.916-04:002014-08-14T12:24:14.916-04:00beautifully written. beautifully written. Fatcathttps://www.blogger.com/profile/10687367589610368444noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-81219785067086504962014-08-14T11:33:27.401-04:002014-08-14T11:33:27.401-04:00Difference brings uncertainty, tragic feelings fol...Difference brings uncertainty, tragic feelings follow, and then you learn to adapt.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-20705038704988620632014-08-14T09:35:03.811-04:002014-08-14T09:35:03.811-04:00I know that feeling - thanks for writing this - Kr...I know that feeling - thanks for writing this - KristenAnonymousnoreply@blogger.com