tag:blogger.com,1999:blog-401303964563152307.post3039485898985149035..comments2024-03-17T12:02:12.410-04:00Comments on Love That Max : Seizures are the devil Ellen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-401303964563152307.post-9584797311500617262015-05-29T16:07:14.852-04:002015-05-29T16:07:14.852-04:00Do you wonder if he's had seizures that you we...Do you wonder if he's had seizures that you weren't aware of? My son was recently diagnosed with epilepsy at age 13, and I can't help but wonder if some have happened as he fell asleep, but I was unaware... Scary thoughts. Cathy D.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-30161361946794841162015-05-28T12:52:38.234-04:002015-05-28T12:52:38.234-04:00Hello I read on abother blog that they have to kee...Hello I read on abother blog that they have to keep increasing the dose as they age be very watchful around the teen years because ive herd alot about puberty messing with kids with epilepsy I lived with a severely autistic middle aged man he was on a ton of meds a few times a day he was constantly having different types of seizures its a sad thing reallyAnonymoushttps://www.blogger.com/profile/03813018096829400099noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-1665892272766567252015-05-28T09:24:36.177-04:002015-05-28T09:24:36.177-04:00This just moved me to tears. I've never had to...This just moved me to tears. I've never had to deal with a child's seizure; it sounds terrifying. I'm so glad that Fireman Max is doing well again. Deborah Wnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-54725708675831881692015-05-28T07:51:19.248-04:002015-05-28T07:51:19.248-04:00Glad I could make you smile :-)
-AlyssaGlad I could make you smile :-)<br />-AlyssaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4994941392561584742015-05-27T18:16:15.443-04:002015-05-27T18:16:15.443-04:00Thanks, Hillary. Thanks, Hillary. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80380087519690543152015-05-27T18:14:30.949-04:002015-05-27T18:14:30.949-04:00Max definitely doesn't remember a thing, which...Max definitely doesn't remember a thing, which is good. "Didn't have time to buy the tee shirt" just totally made me smile, thanks, I needed that. Planning to talk more with the neuro in person and revisit Midazolam. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4890967938857081872015-05-27T17:04:01.036-04:002015-05-27T17:04:01.036-04:00That is good that it was under two minuits and tha...That is good that it was under two minuits and that certainly possibleMax .Shttps://www.blogger.com/profile/10904861794391197803noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2206697572591429092015-05-27T11:44:43.164-04:002015-05-27T11:44:43.164-04:00Ellen I'm so sorry. Seizures are the worst of ...Ellen I'm so sorry. Seizures are the worst of the worst of the worst. I just hate them so much. I'm so angry that Fireman Max had to experience another one. We are thinking of him and hope those meds get squared away ASAP. XoHillary Savoiehttps://www.blogger.com/profile/11518454468752819000noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-30531566272963920772015-05-27T07:50:58.322-04:002015-05-27T07:50:58.322-04:00Hey, sorry to hear about the chaos at your end. As...Hey, sorry to hear about the chaos at your end. As I say, "been there, done that, didn't have time to buy the tee shirt!"<br /><br />Yes, seizures are no fun, but according to the neurologist we use (who also recommends Midazolam, BTW), kids generally don't really remember them happening. Of course, the last time my son had one he kept saying for the next two days "you fell", but maybe he just knew that he "woke up" on the floor, or maybe he remembered going down, but not the shaking itself...who knows??? But yes, we freak out and wish to crawl into the nearest box of chocolate, and they just go merrily on their way :-)<br /><br />BTW, check with your neurologist - mine mentioned to us a while back that yes, growth spurts can require medicine changes, but apparently puberty can do weird things too (for instance, kids with autism like my son will sometimes start up with seizures at puberty, even though they've been fine until then). Plus they're big on hydration - apparently if a kid dehydrates they're more likely to have a seizure.<br /><br />Good luck with all of this - Alyssa<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-42687071705678338082015-05-26T22:46:55.198-04:002015-05-26T22:46:55.198-04:00Here's to many more seizure-free years, Sheila...Here's to many more seizure-free years, Sheila. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-25381635608238265812015-05-26T22:44:12.580-04:002015-05-26T22:44:12.580-04:00Yes, it really was a blessing that it lasted under...Yes, it really was a blessing that it lasted under two minutes, as I'm sure you know better than us all, Meredith. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-69564925751832351122015-05-26T22:43:45.338-04:002015-05-26T22:43:45.338-04:00I know, pure luck, right? Thanks, Louise. I know, pure luck, right? Thanks, Louise. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-23163290295616453882015-05-26T22:43:34.385-04:002015-05-26T22:43:34.385-04:00Harriet, thanks for mentioning. I actually spoke w...Harriet, thanks for mentioning. I actually spoke with our neuro right after I read this and mentioned Midazolam. I am not concerned about administering Diastat if need be, but I wondered if Max's babysitter might be more comfortable with a nasal injection. The doctor mentioned that it can cause vomiting, which I thought might further unnerve our sitter, so for now we are sticking with Diastat.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77771292800711664762015-05-26T22:41:47.721-04:002015-05-26T22:41:47.721-04:00Febrile seizures are pretty common, even in kids w...Febrile seizures are pretty common, even in kids with no prior medical history. I'm sorry you had to see that. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-50180312103953333042015-05-26T22:40:50.046-04:002015-05-26T22:40:50.046-04:00Thanks, Laura. Thanks, Laura. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-60697949268666876662015-05-26T22:39:21.777-04:002015-05-26T22:39:21.777-04:00OK, done, I gave Fireman Max a hug for you. And en...OK, done, I gave Fireman Max a hug for you. And enough for the whole planet!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-56008680917697059202015-05-26T22:38:57.389-04:002015-05-26T22:38:57.389-04:00Oh, this couldn't be more true, mentioning in ...Oh, this couldn't be more true, mentioning in tomorrow's post. I hope your child is doing OK. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-47577605082938453922015-05-26T22:38:30.446-04:002015-05-26T22:38:30.446-04:00Anna, you're right, he's got that spirit.Anna, you're right, he's got that spirit. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-5084839582747354402015-05-26T22:37:21.490-04:002015-05-26T22:37:21.490-04:00Thanks, Lauren. I shared this not because I have g...Thanks, Lauren. I shared this not because I have great guts but because it's cathartic, as is reading these comments. xoEllen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-15568618571112939842015-05-26T22:36:01.163-04:002015-05-26T22:36:01.163-04:00He is OK, and being Max, his only concern is that ...He is OK, and being Max, his only concern is that I am OK. This. Boy. Thanks, Shell. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-33374048666522579922015-05-26T22:35:41.042-04:002015-05-26T22:35:41.042-04:00Knocking wood for you, too. Max's meds definit...Knocking wood for you, too. Max's meds definitely needed adjustment—I'll bet anything the bloodwork we were getting next weekend would have shown that.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-51005796429948153912015-05-26T22:34:18.833-04:002015-05-26T22:34:18.833-04:00Thanks, hon. I need some PD therapy when we have l...Thanks, hon. I need some PD therapy when we have lunch!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-3145487758693099022015-05-26T22:33:58.636-04:002015-05-26T22:33:58.636-04:00Thanks, Alexis. It sure isn't lucky that he ha...Thanks, Alexis. It sure isn't lucky that he has seizures, but it is ultimately lucky that I got him as a kid.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-44032402997275730172015-05-26T21:25:44.570-04:002015-05-26T21:25:44.570-04:00Oh my goodness, Ellen, how scary! I'm glad Max...Oh my goodness, Ellen, how scary! I'm glad Max doesn't remember any of it (except for the policeman). I am thankful he is ok now!Sabrina Steylinghttps://www.blogger.com/profile/10502908654294596013noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-64247610029130992902015-05-26T21:18:56.675-04:002015-05-26T21:18:56.675-04:00My heart stopped beating as I read " Seizures...My heart stopped beating as I read " Seizures are the closest I have ever come to seeing Max die" because I know that exact feeling all too well. That is exactly what I thought was happening when I witnessed my daughter's seizures. We are now at the point that she has been 2+ years seizure free so we may try weaning her from her Carbatrol and I am terrified! I am so glad that this one was quick and that Max bounced back so nicely. What a blessing that he was sleeping with you at the time! If only we didn't have memories of them! Stay strong!Sheilahttps://www.blogger.com/profile/12653655890121241967noreply@blogger.com