tag:blogger.com,1999:blog-401303964563152307.post929499468069155983..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : One big way to help your child with special needs: Have an open mindEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-401303964563152307.post-26215758382251612262016-10-12T06:35:08.780-04:002016-10-12T06:35:08.780-04:00Yes and no. I find the balance between being open ...Yes and no. I find the balance between being open minded and trying new things vs. acceptance, finding happiness with what the child can do, and therapy fatigue, a very difficult one. At the moment i am in the "acceptance and enjoying what we have" and that means i'm more closed to new therapies than before...<br /><br />Interesting discussion in any case.<br /><br />Thanks for blogging, take careAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-22377837579416052572016-10-11T14:40:45.481-04:002016-10-11T14:40:45.481-04:00I loved this post. I constantly find myself thinki...I loved this post. I constantly find myself thinking "there is no way (insert treatment here) will work", and then I try them, and am amazed. Baby not slepeing? try a sensory blanket (amazing!), not walking, try leg braces (stands so much straighter)! This is a great remiderf or a lot of parents.<br /><br /><br />Paige<br />htp://thehappyflammily.comPaige Flammhttps://www.blogger.com/profile/16069836120389924817noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-3509692954539044972016-10-11T10:51:18.929-04:002016-10-11T10:51:18.929-04:00Doctors can't increase your potential either. ...Doctors can't increase your potential either. They all thought I'd cure cancer, end war, and make clean, infinite energy by now. Guess what? I have done nothing of the sort. They can only work with what they have. I turned out to have less and others will turn out to have more.Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-21975195661062240162016-10-11T08:50:16.562-04:002016-10-11T08:50:16.562-04:00Thank you Ellen so much for this post. My son too ...Thank you Ellen so much for this post. My son too suffers from grade 4 bilateral brain bleed and he is 2. I have a conversation with his neurologist yesterday and she says there is no cap to a person's potential when it involves stroke at early age because the brain keep healing and growing.<br />I didn't buy dr Karen Page book yet but I read her article about hemi while I were looking up statistic about hemi. I have learn a great deal about how kid will walk but how they will walk is the concern.<br />I just want to share my experience a little bit. Currently my son is receiving PT, OT, ST, and feeding therapy, make it total about 3.5 hours a week. To a child at age 2 and for a small family that's plenty of therapy. We find it is busy enough to keep up with his daily therapy, his daily routine and does his home exercise. I know there are many other therapy out there but I find that I need to choose wisely so it will not overwhelm my son or overwhelm us as parents and also our budget.<br />There are pro and cons in all therapies so if it is not overwhelming and if one can afford it without breaking the bank or if it's really necessary for the child to have improve quality of life then yes, but otherwise I think traditional therapy is very effective and is enough to keep a family on their toes. <br />Thank you for reading my lengthy comments.Tnhttps://www.blogger.com/profile/11341870571930361590noreply@blogger.com