tag:blogger.com,1999:blog-401303964563152307.post8510172518993733549..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : Special needs motherhood is the necessity of inventionEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-401303964563152307.post-36373567632641598462012-02-08T10:13:53.947-05:002012-02-08T10:13:53.947-05:00My little one is super skinny right now (due to bo...My little one is super skinny right now (due to both disphagia & genetics), so last fall I started making him pants so he could wear something warm that didn't make him look like he was wearing high-waters or had a bubble butt. I'm getting the pattern down pretty good now. I love the idea of the g-tube button hole from Klmoore0706.<br /><br />I also asked some boyscouts at my church if they could make a switch adapted toy - so we now have an "Angry Birds" toy, and an offer to do more.<br /><br />We also have an extremely handy PT who has helped make all sorts of specialized tri-wall seating for my son - out of tri-wall cardboard, small dowel rods, and a glue gun.Anonymoushttps://www.blogger.com/profile/18230387878463331527noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2664258629594044182012-02-07T17:02:13.925-05:002012-02-07T17:02:13.925-05:00This is a tiny thing, but the past two times our d...This is a tiny thing, but the past two times our daughter has been in the hospital for tests, a kid-sized hospital gown has made it's way into my purse. Perfect art smock!<br /><br />Classy... I know.Amandahttps://www.blogger.com/profile/07560423943596525540noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-20585394075449967032012-02-07T16:14:03.662-05:002012-02-07T16:14:03.662-05:00Love this post and the comments~you all are so res...Love this post and the comments~you all are so resourceful! I'm not that creative but I can be pushy and loud--I too think that's a virtue. :)Katehttp://www.littlelegal.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-29545805571352410462012-02-07T15:40:08.529-05:002012-02-07T15:40:08.529-05:00My son loves music and I have always wanted to do ...My son loves music and I have always wanted to do music therapy with him. I was not able to find a music therapist in our city (that didn't cost a fortune). In passing I mentioned it to his visual therapist and she actually had the CNIB (Canadian National Institute for the Blind) set up a music therapy class just for him. There will be other kids attending but she did this just for us. How awesome is that? Our first class is this Friday :-)Jennyhttps://www.blogger.com/profile/16213590209738598377noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-78794642280179457912012-02-07T12:45:17.028-05:002012-02-07T12:45:17.028-05:00I am lucky enough to be married to an engineer so ...I am lucky enough to be married to an engineer so my husbands days are filled with finding little solutions to make life easier. <br /><br />When my son was starting to sit up about 15 months we put wrapping paper around the outside of the bottom half of the pack and play. In order for my son to see out to watch TV (his motivator in life) he had to sit up. Once he sat up we put the wrapping paper around the entire pack and play and he learned to pull himself to stand up. He want from trying to sit to crawling to pulling to stand very quickly.<br /><br />My other great find was making a washable car seat cover. My son's reflux caused him to vomit whenever we were in the car so I used the bundle me as a template and made a car seat cover that used elastic around the outside and Velcro for the straps so that I could take it off without taking apart the car seat.Alanahttps://www.blogger.com/profile/06904178568121948088noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-89525764433321526422012-02-07T12:04:47.433-05:002012-02-07T12:04:47.433-05:00We have a scooter board for Ian to use to scoot ar...We have a scooter board for Ian to use to scoot around the house on his belly (this was pre-wheelchair). It was hard for him to crawl forward on our wood floors, so I cut finger holes in a pair of kid socks with the grippers on the bottom and put them on his hands. They not only keep his hands cleaner, but the grippers give him traction on the floor as well!Nicole@BoyOnARollhttp://www.boyonaroll.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-60299287061520578072012-02-07T11:07:49.392-05:002012-02-07T11:07:49.392-05:00My Lily is a night-time pajama escape artist. My ...My Lily is a night-time pajama escape artist. My solution? Buy zip-up footie pj's. Cut the feet out. Put on backwards. No more night waking to a naked kid in a wet bed! :)<br /><br />Lily will also throw entire rolls of toilet paper in the potty just for the sheer hilarity of it. Now, the TP is contained in lovely baskets hanging by the potty out of her reach. Only down side? Many a guest has hollered out from the bathroom to ask where the toilet paper is! :) <br /><br />Creativity is key - trying to stay one step ahead of these kids (or even on the same walk!) is a full-time job!AlongCameTheBirdhttps://www.blogger.com/profile/04590432394118183751noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-45334059967238390162012-02-07T11:03:33.941-05:002012-02-07T11:03:33.941-05:00I want to share an idea my husband thought up: sew...I want to share an idea my husband thought up: sew a button hole into the side of zippered one-piece sleepers for our daughter who has a g-button! She can eat and not have the feeding tube run up by her neck.Klmoore0706https://www.blogger.com/profile/15492097636756194457noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-33680895588629355752012-02-07T10:11:25.357-05:002012-02-07T10:11:25.357-05:00I just wrote about some of the things I do to teac...I just wrote about some of the things I do to teach social skills to my child with ASD. Some great tips, if I do say so myself :) http://www.thebabymachine.comJulie Colehttps://www.blogger.com/profile/07094579790114594445noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2649205826352310342012-02-07T09:53:50.785-05:002012-02-07T09:53:50.785-05:00We put a bicycle basket (you know, one of those wo...We put a bicycle basket (you know, one of those woven ones?) on the back of my daughter's walker. (It really dresses it up...look at me, getting fancy!) Yesterday she tipped her walker and smashed up her face, so we bought a 3-pound weight to put in that basket. PT, OT, mechanical engineering...my husband and I do it all, heh.Marlahttps://www.blogger.com/profile/16809949267562980590noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80358737859359009452012-02-07T08:36:17.798-05:002012-02-07T08:36:17.798-05:00Great post! Can't wait to hear everyone's...Great post! Can't wait to hear everyone's comments! <br /><br />Love Barb's story about calling the college. Thing is - it's a win-win-win. Barb's son gets an optimized headrest and Dynavox mount - the students get great experience, and the wheels are set in motion for these students and this engineering department to collaborate with other people with disabilities in the future (the ripples can extend further than you'll ever know). <br /><br />When we look at challenges in this creative, network building way - we're creating mutual relationships that make the world better for our kids - and for our community. <br /><br />The whole world needs to learn from the creativity of special needs moms!Mary@LifeAfterIEPshttp://lifeafterieps.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-59937338333921899272012-02-07T08:14:45.190-05:002012-02-07T08:14:45.190-05:00Currently I am being 'pushy' trying to get...Currently I am being 'pushy' trying to get a regular high chair for a $$-stressed family. I've been called a 'bulldog' in the past (this was pre-lipstick-reference days). <br /><br />Add a few pats to your back from me, Ellen! Another excellent post!Barbarahttp://www.therextras.comnoreply@blogger.com