tag:blogger.com,1999:blog-401303964563152307.post8345727530440006435..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : Raising children with special needs: One more step toward independenceEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-401303964563152307.post-6266869533945501672016-08-19T20:48:38.596-04:002016-08-19T20:48:38.596-04:00Meds are important. I am glad he achieved this new...Meds are important. I am glad he achieved this new level of self-awareness, but fear the hardships it opens him up to.Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-64623265132091709632016-08-01T13:17:40.697-04:002016-08-01T13:17:40.697-04:00I'm a counselor for a week long camp for kids ...I'm a counselor for a week long camp for kids that need technical assistance with breathing - kids on venilators or that have tracheostomys or use CPAP etc. One of our kids in my cabin even though he is non verbal and needs a lot of help was able to set up all his own respiratory equipment AND direct the nurses etc on his feeding settings etc. Rick The Geekhttps://www.blogger.com/profile/14745984669434766460noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-16415349566248714712016-08-01T12:17:46.849-04:002016-08-01T12:17:46.849-04:00Way to go Max! Independence is great but I'm g...Way to go Max! Independence is great but I'm guessing it's bittersweet in this case as it shows his awareness of his seizures. Kathrynnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-85915568021983907082016-08-01T11:41:24.155-04:002016-08-01T11:41:24.155-04:00Yay Max! For us it's one step forward, two ste...Yay Max! For us it's one step forward, two steps back. At least it seems that way sometimes. We can add, 'Can cook his own eggs,' to the the good list, but we can also add 'Took two doses of meds and mom had to call poison control to the 'needs more work list...'The on call nurses voice trailed off delicately when I explained the issue to her; "He's 17?" she asked. No way was I going there. Anyway, keep it up Max!Melissahttps://www.blogger.com/profile/15698048718456255433noreply@blogger.com