tag:blogger.com,1999:blog-401303964563152307.post8038216730143046356..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : To the parent whose child has been diagnosed with cerebral palsyEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-401303964563152307.post-41896670989834802962017-04-11T16:45:55.540-04:002017-04-11T16:45:55.540-04:00Thanks for this, I so needed to read it today... M...Thanks for this, I so needed to read it today... My daughter is just over 2 and also has CP. I've really been struggling with it again recently. Just sometimes wish we could see into the future, so you could know how it all turns out. What a rollercoaster all of this is! She has the brightest laugh though and is just the cutest, friendliest little kid you'll ever meet. Wouldn't change her for the world!Ericanoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-89446955384897982942017-04-05T17:15:51.921-04:002017-04-05T17:15:51.921-04:00Thank you so much for this hopeful post. My four y...Thank you so much for this hopeful post. My four year old son has CP and we are walking this journey now. I enjoy reading your blog and participating in the Friday link ups when I have a post to share. Thanks for taking the time out of your busy schedule as a mom to provide this resource!Amandahttps://www.blogger.com/profile/17466516179881394870noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-51545355757783922712017-03-29T16:06:44.804-04:002017-03-29T16:06:44.804-04:00Thank you so much for this beautiful article! As I...Thank you so much for this beautiful article! As I read it, I realized that this entire article is me right now.. every worry.. every question.. this really hit home with how I've been feeling. We just encountered one of the gloomy doctors who crushed our hearts, but it didn't take long through prayer to overcome the sadness and have hope for a bright future for our boy. He will be 6 months on the first. Suffered from lack of oxygen at birth and was diagnosed with HIE. We were told he would not make it. But he did. Now the concern stands with CP as he gets older. Also concern for his vision. He is seeing all his therapists and we work with him every single day. He is behind on milestones, but is making leaps and bounds every single day and never ceases to amaze us with his strength and how far he has come. This article brought peace to my heart! Thank you again! ❤️Erikanoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9482353577119388462017-03-28T01:44:31.625-04:002017-03-28T01:44:31.625-04:00My son has SB instead but I related as I read it. ...My son has SB instead but I related as I read it. He's nine months old now but not my first child. I never bothered to read BBC emails because they are so not helpful when your child has a disability. Still in the first year. I have a daughter who's typical as well. It was easier I guess in some ways because I was not blindsided by the news at birth. I've come to accept that he will be a full time wheelchair user.<br /><br />Leah<br /> <br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70788930997110638302017-03-26T20:01:24.698-04:002017-03-26T20:01:24.698-04:00Oh, I love that he can clap for himself! As great ...Oh, I love that he can clap for himself! As great as it is to relish our kids' accomplishments, it's that much better when they can take pride in themselves. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-62424965359018604652017-03-26T20:00:33.551-04:002017-03-26T20:00:33.551-04:00Aw. Max was the same back then. I'm sure your ...Aw. Max was the same back then. I'm sure your son will continue to light up rooms, as Max can. It's a talent!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-27361263049266608402017-03-26T11:52:47.417-04:002017-03-26T11:52:47.417-04:00Thank you for sharing this, it's wonderful!!! ...Thank you for sharing this, it's wonderful!!! We are fortunate to have a village made up of family and friends, that support and are so excited with each little bit of progress. We've clapped so much for his new and entertaining accomplishments that he now claps as well for himself, it's wonderful Donnahttps://www.blogger.com/profile/11855182158649975224noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-7907227540189272902017-03-26T05:53:13.727-04:002017-03-26T05:53:13.727-04:00"The cuteness...is not the least bit impaired..."The cuteness...is not the least bit impaired." I love this! <3 It's so true. My 3.5-year-old son has CP, and while he can't say much, he sure can light up a room with his giggles!Michelle L. Joneshttps://www.blogger.com/profile/11181384461923644781noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-46363285343257568552017-03-23T21:57:49.584-04:002017-03-23T21:57:49.584-04:00Andrew, you are one of the amazing adults I've...Andrew, you are one of the amazing adults I've met in the online community. If you are reading this and haven't seen Andrew's blog, check out <a href="http://disabilitythinking.com/about/" rel="nofollow">Disability Thinking</a>. Also: <a href="http://thatcrazycrippledchic.com/" rel="nofollow">That Crazy Crippled Chick</a><br />by Cara Lebowitz and <a href="http://thesqueakywheelchair.blogspot.com/" rel="nofollow">The Squeaky Wheelchair</a>.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-56618372929610683812017-03-23T21:50:27.064-04:002017-03-23T21:50:27.064-04:00Whoa. Talk about a lack of beside manner! How'...Whoa. Talk about a lack of beside manner! How's your daughter doing, Ellen? Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-60309807921397203722017-03-23T21:49:21.785-04:002017-03-23T21:49:21.785-04:00That can be a toughie. It took some family members...That can be a toughie. It took some family members a long time to accept Max for who he is. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-78050526708074924112017-03-23T21:48:43.313-04:002017-03-23T21:48:43.313-04:00You are very welcome. Enjoy that boy now. I'm ...You are very welcome. Enjoy that boy now. I'm telling you, they really grow up fast even though time may feel like it's dragging when there are developmental delays.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-14072253625355758342017-03-23T21:35:55.601-04:002017-03-23T21:35:55.601-04:00Thanks, Paige!Thanks, Paige!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-33069527029796035852017-03-23T21:35:47.333-04:002017-03-23T21:35:47.333-04:00Here's to more and more progress!Here's to more and more progress!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-21742638773213087862017-03-23T21:34:26.837-04:002017-03-23T21:34:26.837-04:00Thank you, Donna. Thank you, Donna. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-83055762683203395242017-03-23T21:18:04.095-04:002017-03-23T21:18:04.095-04:00Yes. So well said. My daughter was eight months ol...Yes. So well said. My daughter was eight months old (now 23) when a doctor said under his breath as we were leaving, "Oh, and she has cerebral palsy." Anonymoushttps://www.blogger.com/profile/01885555704959982113noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80774952478526408682017-03-23T20:41:16.208-04:002017-03-23T20:41:16.208-04:00Fantastic post! I'm with the Author 100% but s...Fantastic post! I'm with the Author 100% but struggling to convince Family and Friends to "see the good" instead of "focusing on the negative". Life is short and precious, try to enjoy every moment.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-56484997216707368322017-03-23T20:07:43.867-04:002017-03-23T20:07:43.867-04:00Amazing. Thank you for this great article. My boy ...Amazing. Thank you for this great article. My boy is only 6 and I am determined to enjoy this age as much as possible. He has already come so far. I also need to repeat to myself that he is going to be ok and so will i. Kerihttps://www.blogger.com/profile/13366769063916043588noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77638618214521789972017-03-23T13:01:58.831-04:002017-03-23T13:01:58.831-04:00This is beautiful and wise advice. I would only ad...This is beautiful and wise advice. I would only add one more suggestion ... get know adults, even just one adult ... with CP or a similar disability. They can provide you (the parent), and someday your child with real-life feedback about what's ahead, and perspectives on what you are going through now.apulranghttps://www.blogger.com/profile/16133974049950425863noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-19734165970294928272017-03-23T12:43:12.304-04:002017-03-23T12:43:12.304-04:00Oh, I agree with every bit of this! Definitely sha...Oh, I agree with every bit of this! Definitely sharing this with my friends!<br /><br /><br />Paige<br />http://thehappyflammily.comPaige Flammhttps://www.blogger.com/profile/12611640192527041942noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-75487639122096261972017-03-23T10:01:37.546-04:002017-03-23T10:01:37.546-04:00Nice to see such a wonderful feelings. We are also...Nice to see such a wonderful feelings. We are also going thru the same phase of seeing minor change in our son who is 9 yrs. Old.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80969245688708427172017-03-23T08:14:44.687-04:002017-03-23T08:14:44.687-04:00Beautiful. Thank you, Ellen! Beautiful. Thank you, Ellen! The Caregivers' Living Roomhttps://www.blogger.com/profile/10920119448415733545noreply@blogger.com