tag:blogger.com,1999:blog-401303964563152307.post7737069591482711310..comments2024-03-28T03:35:52.176-04:00Comments on Love That Max : Raising kids with special needs: Why it's good I didn't know then what I know now Ellen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-401303964563152307.post-83644668788371029922016-04-09T17:36:03.947-04:002016-04-09T17:36:03.947-04:00Thank you. And yes I've changed. But in the fi...Thank you. And yes I've changed. But in the first few days after the diagnosis all I could think about was my son's disability and that I wanted to abort. I'm glad I didn't research spina bifida the same day rather I tried to process the news. My son and daughter are due in a few weeks time in early May. <br /><br /><br />BTW, the last comment seems to be from a scammer. Hollynoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-22835251908083010432014-11-12T03:48:00.617-05:002014-11-12T03:48:00.617-05:00You may have even clicked on the links held within...You may have even clicked on the links held within and felt the sting of losing your account to an industrious and <a href="http://blog.ryaneagle.com" rel="nofollow"> <strong> Ryan Eagle Scammer</strong> </a>. Shirl12350https://www.blogger.com/profile/02843822750627492327noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9523465113376968392014-11-10T12:41:09.192-05:002014-11-10T12:41:09.192-05:00Fantastic post Ellen! I think if I were to become ...Fantastic post Ellen! I think if I were to become a parent of a child with disabilities I, too, would become obsessed with "knowing" what was to come, even though I have disabilities myself and talk a good game about acceptance and such. I'd want to know exactly what to expect and what to shoot for. And patience probably wouldn't be one of my stronger suits.apulranghttps://www.blogger.com/profile/16133974049950425863noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80984147886147581062014-11-09T22:49:38.334-05:002014-11-09T22:49:38.334-05:00 Thank you for such a wonderful post. We are gran... Thank you for such a wonderful post. We are grandparents of an 11 mo. old who suffered HIE prior to and during emergency c-section at 33 weeks. Your expressive, heartfelt words reflect so many of thoughts and feelings we have had over the past 11 months. This will be read and re-read as move forward in our journey with our little one ...thank you for helping us, and others, with your posts. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-32975205566149566712014-11-08T10:16:25.131-05:002014-11-08T10:16:25.131-05:00Great post - thanks for sharing what so many of us...Great post - thanks for sharing what so many of us moms feel. When my daughter was diagnosed with autism all I could see was doom and gloom. But as I learned about her and what she needed that all changed. Now she is 15 and a happy, healthy teen who loves to write creative stories.D Marcottehttps://www.blogger.com/profile/00967899523022149905noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-90901205959600188032014-11-07T07:58:57.345-05:002014-11-07T07:58:57.345-05:00Well done, warrior mom! What Max CAN do IS a test...Well done, warrior mom! What Max CAN do IS a testimony to your dedication as a mother. And sharing glimmers of hope with those who come after us is a noble privilege indeed.SNAPPIN MINISTRIEShttps://www.blogger.com/profile/12507037514979438411noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-21700228174848823142014-11-06T14:49:49.333-05:002014-11-06T14:49:49.333-05:00This is just beautiful. Thank you for writing it.This is just beautiful. Thank you for writing it.MelanieMagichttps://www.blogger.com/profile/02376041688717780738noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-54482675800580626582014-11-06T13:25:05.923-05:002014-11-06T13:25:05.923-05:00"Nothing may feel normal right now, but you w..."Nothing may feel normal right now, but you will find another normal. And it will be a good place." Love that!Nishahttp://nisha360.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-65749326151355097102014-11-06T12:47:44.825-05:002014-11-06T12:47:44.825-05:00You can squat 55 lb? I bow down to you :) I traine...You can squat 55 lb? I bow down to you :) I trained with my daughter with her squatting 30 lb and I tried 15... couldn't keep up. I love hearing your comments on this blog, please tell us more!FunMumX3noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-28578953430108994632014-11-06T12:12:15.299-05:002014-11-06T12:12:15.299-05:00You speak to me heart! I was that mom too. What ...You speak to me heart! I was that mom too. What seemed like the longest days of my life...I couldn't eat, sleep, go a second without worrying about the unknown. I have never prayed so hard in my entire life! I had to disconnect from social media and some of my friends to grieve. I finally realized one day, I can't let tears of anxiety and worry cloud my ability to notice sweet happenings. I will not let fear consume my joy. We too, celebrate "inchstones"! My cousin (an autistic mom) once told me, "your pain is not her pain." Although its sad when they might not interact with other children yelling desperately to get their attention, or have noticeable quirks that leave everyone staring in your direction, our kids have no idea that they're different. We embrace those differences and celebrate them. When I was pregnant with my precious Mila, I prayed HARD for a child that would be different. A child that would stand out and be nothing like those around her. Although having a child with missing DNA was not my idea of "different", I can't imagine her being anything else than who she is! She is the happiest, sweetest, most musically inclined, special soul I have ever met. She doesn't walk; she doesn't talk; but she's amazing and teaches me everyday. After her diagnosis, we met with the geneticist. I almost felt as if they were surprised by Mila's function. Her syndrome is so broad and unpredictable. The doctor looked at me and said exactly what I had been feeling... "Mila will write her own story." Thank God! Its hard when you have physicians dictating who your child will be. There is only one Physician and he doesn't wear a monogrammed white coat with a laptop in his hand.Anonymoushttps://www.blogger.com/profile/15945192712679645593noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-75206819692419290142014-11-06T11:11:44.508-05:002014-11-06T11:11:44.508-05:00Thank you for this and I couldn't agree more. ...Thank you for this and I couldn't agree more. My son is 2.5 right now and I don't want to fast forward and see the future nearly as much as I did during his first year. As much as I wanted that, I'm so thankful my wish was not granted. My kid is a bubbly and happy 2-year-old but if I had seen back then that his speech would be delayed or that he would still be working on unassisted sitting at this age, I would have probably been far more worried than would have been necessary. We do "grow into" our child's diagnosis. I think we need that time as parents. If we had all the information up front it might be too much to process.Mary Evelyn Smithhttp://www.whatdoyoudodear.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-52167283983303647682014-11-06T11:02:26.282-05:002014-11-06T11:02:26.282-05:00That's exactly how I feel. Especially this:
&...That's exactly how I feel. Especially this:<br /><br />"I needed to grow into Max's diagnosis, and to develop as a parent. Now these things are just part of who he is, not the whole of him. They do not faze me."<br /><br />xo <br /><br /><br /><br />BLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-83964568107542282072014-11-06T10:48:36.258-05:002014-11-06T10:48:36.258-05:00As an autistic flutist, the way I do things often ...As an autistic flutist, the way I do things often deviates from average. However, I didn't come to be average. I came to be exceptional. It's not average to take three honors classes move from 10th to 4th chair with 10 flutes total in band, or for a girl like me to squat 55 pounds. I think being autistic makes me very dedicated in what I do. I don't take my classes for granted because I know I might not be able to participate in them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80948470023196494962014-11-06T09:43:56.557-05:002014-11-06T09:43:56.557-05:00Very wise post - really resonated with me. Thanks...Very wise post - really resonated with me. Thanks so much for sharing.Julie Steinberghttps://www.blogger.com/profile/05749608879067906559noreply@blogger.com