tag:blogger.com,1999:blog-401303964563152307.post7254003774059907905..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : The painful parts of the form you're filling out about your childEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-401303964563152307.post-85296837322864677722017-01-12T15:39:47.773-05:002017-01-12T15:39:47.773-05:00Aside from the fact that we all eventually die, I ...Aside from the fact that we all eventually die, I agree with this statement.Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-56808106573640191492017-01-12T08:22:05.481-05:002017-01-12T08:22:05.481-05:00Every child has their purpose in this world. We a...Every child has their purpose in this world. We all have our challenges. And we all have our talents. What we need to do is to help each other with the rough spots, and also help each other to find and use our talents. Special children are more work, but they usually give us more love and understanding.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77375834232208307062017-01-12T05:24:06.080-05:002017-01-12T05:24:06.080-05:00I had once heard from a paraplegic lady who was ho...I had once heard from a paraplegic lady who was holding a good position working in a big company.. she was totally dependent on others for her basic needs.. she was fed , bathed, dressed but use to work with great Elan.. once she was asked how does it feel to be dependent.. she replied nothing... I am ok with it. I work.. if I am not able to do these things and there are people helping me with basic stuff it's ok.. I enjoy it.. i enjoy being fed, people dressing me up .. i just simply enjoy my life... It moved me.. I dropped it there... I don't think we should twinge or let it break us.. yes just avail them put ur efforts. If it happens great if it doesn't it's ok...God chose them so they enjoy life in this way .. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-14568862221721020842017-01-11T22:50:27.415-05:002017-01-11T22:50:27.415-05:00#truth#truthAnonymoushttps://www.blogger.com/profile/10589219133669876207noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-63705778058236994212017-01-11T22:22:20.814-05:002017-01-11T22:22:20.814-05:00I feel like that too. I want to be in protests bu...I feel like that too. I want to be in protests but my wheelchair would make it dangerous. I think constantly think about how I would be in the protest if my body hadn't betrayed me. Tuesonanoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-85987628932837350332017-01-11T17:21:59.576-05:002017-01-11T17:21:59.576-05:00Forms are the worst sometimes. Since my daughter i...Forms are the worst sometimes. Since my daughter is two, we still do so much for her, and sometimes it feels so weighty to think about all the things we may STILL be doing for he later down the road. Here's to hoping for the same progress as you this next year. <br /><br /><br />Paige<br />http://thehappyflammily.comPaige Flammhttps://www.blogger.com/profile/12611640192527041942noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-73068267832081756702017-01-11T16:11:54.820-05:002017-01-11T16:11:54.820-05:00Ellen
For dressing all I need is a simple keychai...Ellen <br />For dressing all I need is a simple keychain loop attached to the pants zipper to hook a finger on and pull up. Also for buttons you might want to search the Internet for a "button hook" it has helped me with dress shirts a lot. There's a lot of trial and error but I am confident Max will eventually find out tricks to help himself outMattes's Musingshttps://www.blogger.com/profile/00304075309088592046noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-54738179296474262702017-01-11T12:36:15.696-05:002017-01-11T12:36:15.696-05:00Yes and yes and then some. Bathing, speaking, pott...Yes and yes and then some. Bathing, speaking, potty training, dressing...these are all still on our "to-do" list. But I feel like as long as I leave them there they remain goals. They are still something we aim to "do."Jamiehttp://mom-gene.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9379604745581881442017-01-11T11:06:00.183-05:002017-01-11T11:06:00.183-05:00We never know what the future holds in story for a...We never know what the future holds in story for any of us. If you would have asked my parents all of those years ago if I would be holding down a full time job and making my way in this world they would of said the same thing you have: I hope. Max is still young, and figuring out the world and how best to navigate it. He'll get there.Levihttps://www.blogger.com/profile/07383957384195464798noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-43538352104619794872017-01-11T10:24:34.962-05:002017-01-11T10:24:34.962-05:00Beautiful Ellen. I love the word "Yet"....Beautiful Ellen. I love the word "Yet". It holds so much hope for the future! They might not be able to do it yet, but but we hope/believe that they will. Even if I'm in denial, yet gives me hope for the future. My mom still uses this with my 41 year old brother who has various challenges/disabilities regarding what he is still learning. He may still be at home, need assistance for many things, but is doing more then he was 10 years ago. Kellynoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-1852187271980888422017-01-11T10:15:42.799-05:002017-01-11T10:15:42.799-05:00I know he will! Thanks, Kathryn. I know he will! Thanks, Kathryn. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-78544956800265499092017-01-11T10:15:31.755-05:002017-01-11T10:15:31.755-05:00Yes. That.Yes. That.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-8639797855517401902017-01-11T10:15:19.282-05:002017-01-11T10:15:19.282-05:00Also FYI, the awesome Cara Liebowitz (of That Craz...Also FYI, the awesome Cara Liebowitz (of That Crazy Crippled Chick blog fame) has recommended a hair washer to enable Max to shampoo on his own, this one: http://www.alimed.com/etac-hair-washer.html?atrkid=V3ADWA342718F_20842381444_pla-151151853124__66599244724_g_m_pla__1o1&gclid=Cj0KEQiAzNfDBRD2xKrO4pSnnOkBEiQAbzzeQY7h1z5UfpIoJaK2AjrNaQotTkNwGqVXdT2TlPM3t_MaAr1F8P8HAQEllen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-25866219926062437452017-01-11T10:14:52.511-05:002017-01-11T10:14:52.511-05:00FYI, blog reader/Facebook friend Sheri-Rose has re...<br />FYI, blog reader/Facebook friend Sheri-Rose has recommended the following soap/shampoo dispenser, which she says has been helpful for her son: Simple Human Triple Wall Mount Shower Pump. <br />https://www.amazon.com/gp/product/B002YNQX16/ref=s9_acsd_top_hd_bw_bvgwp_c_x_1_w?pf_rd_m=ATVPDKIKX0DER&pf_rd_s=merchandised-search-3&pf_rd_r=5FEHVHRJ2ZW2B93NC548&pf_rd_t=101&pf_rd_p=e44e8fb4-a4ef-5a6b-af95-9e3e859d2242&pf_rd_i=13749791Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4404950313996409732017-01-11T09:40:27.571-05:002017-01-11T09:40:27.571-05:00It's no secret that we, as human beings, prefe...It's no secret that we, as human beings, prefer to focus on our strengths.Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-23572798797440736542017-01-11T09:29:30.429-05:002017-01-11T09:29:30.429-05:00You are right, progress has no time limit. I'm...You are right, progress has no time limit. I'm sure Fireman Max will continue to make great strides. Anonymoushttps://www.blogger.com/profile/10392626811425787266noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77515859553258871182017-01-11T08:07:04.365-05:002017-01-11T08:07:04.365-05:00Oh, boy, this is pure truth! For so many years I f...Oh, boy, this is pure truth! For so many years I found myself in tears completing my son's Katie Beckett paperwork. His comprehensive clinic visits give me a pounding headache too as our reality becomes so in-your-face.SNAPPIN MINISTRIEShttps://www.blogger.com/profile/12507037514979438411noreply@blogger.com