tag:blogger.com,1999:blog-401303964563152307.post5986091807219969414..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : A word to my fellow bloggers at Blissdom: Please don't pity my child with special needsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger35125tag:blogger.com,1999:blog-401303964563152307.post-22409100770138338312011-02-01T22:25:25.321-05:002011-02-01T22:25:25.321-05:00Yes, yes, yes. My daughter was healthy until the d...Yes, yes, yes. My daughter was healthy until the day after her 3rd birthday, when she came down with a brain infection that has left her with severe seizure disorder, sensory integration problems, speech, balance issues and hearing loss. But she is still the same AWESOME little girl she was. I am blessed - not tormented - by being her mom. And I love your tips about how to address special needs kids in public from a child's perspective.Turquoise Gateshttps://www.blogger.com/profile/14757439386076840547noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-22839762206203482582010-02-13T18:45:00.936-05:002010-02-13T18:45:00.936-05:00I totally agree with what you have written. I have...I totally agree with what you have written. I have a daughter with a physical disability and one with bipolar disorder and wouldn't trade either of them for anything. Thanks for the great article!sharon blakenoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-90343171269000773922010-02-09T12:46:57.100-05:002010-02-09T12:46:57.100-05:00I learn from Superhero Max and his Superhero Mom!!...I learn from Superhero Max and his Superhero Mom!!! Learning more and more with each read... thanks for sharing/allowing others to learn + grow from your life & the wonderful blessings of Superhero Max...<br /><br />Pride in you,<br />Mare H.Mare Hendersonnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9537677483118043412010-02-08T17:14:57.054-05:002010-02-08T17:14:57.054-05:00This was beautiful. Max is lucky to have a mom li...This was beautiful. Max is lucky to have a mom like you!Jackiehttps://www.blogger.com/profile/10775907880182698134noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-29228439022641376682010-02-07T23:26:29.121-05:002010-02-07T23:26:29.121-05:00Now, I need to know why is it that you do not have...Now, I need to know why is it that you do not have a book out for parents struggling with a child that is not typical?<br /><br />You need to be published, Ellen..That much is obvious...<br /><br />am absolutely in love with your strong voice and your confidence in what you're doing.<br /><br />Love your writing, Ellen.<br /><br />AlexandraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-36414771745923531702010-02-07T09:40:14.189-05:002010-02-07T09:40:14.189-05:00Perfectly said.Perfectly said.Kristinahttps://www.blogger.com/profile/13259709507156454270noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-59533061631884799272010-02-06T23:34:41.262-05:002010-02-06T23:34:41.262-05:00Great post.
Great points.
Well said.Great post.<br />Great points.<br />Well said.Mariehttps://www.blogger.com/profile/16158883265713752481noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-85487891924885265242010-02-06T19:10:22.855-05:002010-02-06T19:10:22.855-05:00So glad to have met you in real life! I have plen...So glad to have met you in real life! I have plenty of friends with special needs and I never pity them or their children. Those are the people that seem to love more, understand more, forgive more, and judge less. Those are the people I admire, not pity. I wish I could be more like them. You rock and I am so glad that you stand up for yourself, your son, and other families about this subject.Kimhttps://www.blogger.com/profile/15128941432434492317noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77209246803478915332010-02-06T17:39:18.249-05:002010-02-06T17:39:18.249-05:00Perfectly said. :)Perfectly said. :)Sharonhttps://www.blogger.com/profile/02479345204252020874noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-37512967569240261922010-02-06T15:15:01.788-05:002010-02-06T15:15:01.788-05:00You need a standing ovation for that.You need a standing ovation for that.Karenhttps://www.blogger.com/profile/09037928148778848386noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-12400354147557374602010-02-06T14:58:20.216-05:002010-02-06T14:58:20.216-05:00Amen, Ellen! Nothing else needs to be said...Amen, Ellen! Nothing else needs to be said...Mohttps://www.blogger.com/profile/10083710958029714414noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-30425494522226018482010-02-06T10:08:10.234-05:002010-02-06T10:08:10.234-05:00I just want to say that this is so beautiful and s...I just want to say that this is so beautiful and so is Max!Tina12312https://www.blogger.com/profile/17745568660706968295noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-16671115289323152092010-02-06T10:01:45.973-05:002010-02-06T10:01:45.973-05:00Ellen, my aunt had a boy with CP. Unlike Max, how...Ellen, my aunt had a boy with CP. Unlike Max, however, James was virtually an infant. Whenever people gave her that infamous, "Awwww..." she was quick to tell them, "God gave James to me because he knew I was strong enough to handle him. Special children only go to special people, so I know that I must truly be blessed."<br /><br />She was oh, so right; James truly was a blessing!<br /><br />spitfyr323 at hotmail dot comCMChttps://www.blogger.com/profile/04771053328814042482noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-225639948897343332010-02-05T23:49:31.117-05:002010-02-05T23:49:31.117-05:00Hi! I'm visiting from MBC. Great blogHi! I'm visiting from MBC. Great blogVeronica Leehttps://www.blogger.com/profile/14411581380408080378noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-21461705005591595432010-02-05T23:16:30.122-05:002010-02-05T23:16:30.122-05:00Thank-you for this because you answered a lot of q...Thank-you for this because you answered a lot of questions for me. Questions that I would have assumed the wrong answers for.<br /><br />If my children and I run into a child with CP, I will know better how to handle the situation. I want to do it with grace. I want to do it with dignity and I want my children to do the same.<br /><br />I just hope the other mom thinks like you do!<br /><br />; 0 )Karin Katherinehttps://www.blogger.com/profile/14516662405528660516noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-38253089665152767342010-02-05T22:57:36.662-05:002010-02-05T22:57:36.662-05:00Absolutely fantastic.
You've shared, and taug...Absolutely fantastic.<br /><br />You've shared, and taught, so much.Ann Harrisonhttps://www.blogger.com/profile/06018952741830928799noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-7974124506434457132010-02-05T22:42:34.962-05:002010-02-05T22:42:34.962-05:00Very well said and very inspiring. I hate the I am...Very well said and very inspiring. I hate the I am sorry or the look of pity. I respond don't be sorry. Thank you for educating those around you....nancyhttps://www.blogger.com/profile/16943446751465263123noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-69763701659708432252010-02-05T20:58:27.579-05:002010-02-05T20:58:27.579-05:00Very well said! Have a great time at Blissdom!Very well said! Have a great time at Blissdom!Jennifer C.https://www.blogger.com/profile/00519997119319142811noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-78789435380956045552010-02-05T20:58:20.108-05:002010-02-05T20:58:20.108-05:00Thank you for this wonderful post! It bothers me s...Thank you for this wonderful post! It bothers me so much that people talk over kids and not too them. I know for many it is hard to see beyond a disability - it was for me too until I learned to. Hugs and have a blast at Blissdom - Kudos to writing this post!Mommy Nirihttps://www.blogger.com/profile/03161213199973714186noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-57849831119503632112010-02-05T20:57:48.959-05:002010-02-05T20:57:48.959-05:00Best. Post. Ever.
Seriously. I wish when people h...Best. Post. Ever.<br /><br />Seriously. I wish when people heard the word "stroke" or "CP," they'd respond with something more along the lines of, "I bet it doesn't stop her one bit!" Because that's true. A response of "That's so sad!" is not.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77513024602533431822010-02-05T20:39:56.837-05:002010-02-05T20:39:56.837-05:00Very well said, Ellen. Thank you for being the str...Very well said, Ellen. Thank you for being the strong woman that you are.Jailen's Mom :)https://www.blogger.com/profile/13946968659175076742noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-41489151972994021642010-02-05T20:30:57.538-05:002010-02-05T20:30:57.538-05:00thanks!
Wish I could run over to Nashville and...thanks! <br /><br /><br />Wish I could run over to Nashville and meet you, but I am working all weekend. Healthcare sux!<br /><br />Hope you're having a blast!MMMomhttps://www.blogger.com/profile/12482388625423164599noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48603025671533643852010-02-05T20:29:15.847-05:002010-02-05T20:29:15.847-05:00Hi Ellen,
I LOVE this post. Growing up as the bi...Hi Ellen,<br /><br />I LOVE this post. Growing up as the big sister of an amazing, wonderful guy with cerebral palsy (now 28,) I spent many years trying to protect him. I didn't have a blog-voice when I was 9 and he was 7, so I appreciate your voice here. <br /><br />Enjoy the journey of Growing With Max as he becomes a man. I have been amazed by my brother every day of my life for the last 26 years :)<br /><br />Thank you for letting me read your story.<br /><br />I'm at Blissdom and would love to find you tomorrow.<br /><br />~JolonJolonhttp://savvychicsavings.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-37726658579832539202010-02-05T20:08:22.286-05:002010-02-05T20:08:22.286-05:00As Deana already said, great the first time and st...As Deana already said, great the first time and still great. It seems like I've been getting lots of "I'm so sorry" type of statements when folks learn about Luke's autism.Janetnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-62360091798450449142010-02-05T19:39:10.849-05:002010-02-05T19:39:10.849-05:00Thanks Ellen -- I will call you The Lorax from now...Thanks Ellen -- I will call you The Lorax from now on!Debbiehttps://www.blogger.com/profile/12747481175356171210noreply@blogger.com