tag:blogger.com,1999:blog-401303964563152307.post5158095606829992216..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : 18 things special needs moms shouldn't feel guilty aboutEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger36125tag:blogger.com,1999:blog-401303964563152307.post-87581469627719280272014-10-26T21:05:43.121-04:002014-10-26T21:05:43.121-04:00Mom with 2 grown autistic sons says ......AMEN !Mom with 2 grown autistic sons says ......AMEN !Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-23840101626200697132013-10-10T09:19:36.723-04:002013-10-10T09:19:36.723-04:00Thanks! I needed this today.Thanks! I needed this today.Mary Claire Brasshttp://best-face-forward.orgnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-46758335728913882382013-08-30T07:43:01.862-04:002013-08-30T07:43:01.862-04:00Seriously....thanks for this. I'm just recentl...Seriously....thanks for this. I'm just recently finding I feel so guilty for what I don't do with my special needs kids. Totally needed this today. Love your blog!!!Cleftmomhttps://www.blogger.com/profile/06939814686167316590noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-71673418433598822882013-08-25T19:36:45.072-04:002013-08-25T19:36:45.072-04:00I can just say thank you my baby is 19 months and ...I can just say thank you my baby is 19 months and ìm just starting to adapt to all this.So difficult. I'm from Argentina.Great blog!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-57175629466870533082013-08-06T22:27:54.369-04:002013-08-06T22:27:54.369-04:00Getting bored during floor play.
It happens. Gasp!...Getting bored during floor play.<br />It happens. Gasp! HA!Leslyhttps://www.blogger.com/profile/02414118115818279383noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87882313654909478052013-07-22T09:33:43.549-04:002013-07-22T09:33:43.549-04:00http://faithgift.blogspot.com/2013/07/anticipation...http://faithgift.blogspot.com/2013/07/anticipation.html<br /><br />My Blog is faithgift please read and share it is for parents of special need kids and a moms story of the daily stuggles and triumphs that are real and honestAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-50082255993605398722013-07-19T08:47:41.441-04:002013-07-19T08:47:41.441-04:00I love honesty of your post Ellen. All true…There...I love honesty of your post Ellen. All true…There are really good points which are shared and felt by many parents. When it is read, it gives the idea that “You are not alone.” Also, it has many beneficial way of looking. I like the idea that you generally mentioned that life is going on with the child, don’t leave your life just be normal and continue what you have. It is reality. As a parent, if you enjoy with your life, you will be energetic to help your child. I really appreciate your advocacy about your child and all these points and your list show that you experienced a lot! I am not a mom yet, but I am an advocate for children with special needs I really feel what you said and I agree that it is really good to face everything related to your son to help him more. <br />I am currently an international graduate student in Special Education and I just started to learn more about children with special needs deeply. Your post gives me many good points to think on them. It is really impressive perspective you have and it makes me happy to see that you are on of the mothers who just focus on her child and aware of everything related to the child. <br />I have met some families who have a child with disability and they avoid talking about their children. Some of them just want to ignore the disability and go on their lives as –normal- as they can. However, I think that disability is part of normality in their life and avoid from disability is actual burden. Therefore, I have always questioned that why they don’t just talk about anything about their child and share what they think directly with others, so you are really good real example for me doing this. <br />I know one family who has a child with Cerebral Palsy, I have been spending time with the child for almost one year voluntarily. The child, Aleyna is my 7 year friend ☺ We talk a lot and I really enjoy listening her. Honestly, I should say that I felt sorry for her when we first met. However, her mother, Esin taught me a lot about parent advocacy. We talked a lot while she was riding Aleyna’s wheel chair. She dedicated her life to Aleyna and she informed me about Aleyna’s limitations and operations. I was surprised that how she was open to talk about Aleyna’s situation and limitations. We read her IEP’s together. Then I just believed that Aleyna has many good things in her and she can really achieve many things. My attitudes changed and I don’t feel sorry for her anymore and I just focused on helping Aleyna in anyway I can. <br />Lastly, I would like to say that being an advocate for the child as a parent is really important. It gives message to everybody who meets with the child that I am the mother of that child who has dreams and I am here to help her to reach her actual potential and I am proud of her! Thank you for the great list Ellen :) <br />Anonymoushttps://www.blogger.com/profile/08586590170602570546noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-20589373430391122013-07-18T22:07:55.738-04:002013-07-18T22:07:55.738-04:00My pleasure!!!My pleasure!!!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-10475202166958539312013-07-18T22:07:39.146-04:002013-07-18T22:07:39.146-04:00You clearly have a wonderful mom, Nisha, because s...You clearly have a wonderful mom, Nisha, because she raised an awesome daughter.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48573433662161459022013-07-18T22:07:01.422-04:002013-07-18T22:07:01.422-04:00Well, two-year-olds ARE a handful! :)
Well, two-year-olds ARE a handful! :)<br />Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-30562929647375245832013-07-18T22:06:36.260-04:002013-07-18T22:06:36.260-04:00I know, Shell. I know. We moms are just too hard o...I know, Shell. I know. We moms are just too hard on ourselves as it is, and it's that much worse when others tell us not to feel the things we do. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-24862944003166062322013-07-18T22:02:36.536-04:002013-07-18T22:02:36.536-04:00You are welcome. No matter what our kids' diag...You are welcome. No matter what our kids' diagnoses, we all sure have a lot in common. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-44388696547938014482013-07-18T20:55:22.924-04:002013-07-18T20:55:22.924-04:00Aw, thanks, Liane!Aw, thanks, Liane!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-39991418721679373602013-07-18T20:55:12.151-04:002013-07-18T20:55:12.151-04:00No, my ESP has been on the blink since 2009. :)No, my ESP has been on the blink since 2009. :)Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-77948238440877633502013-07-18T20:54:55.851-04:002013-07-18T20:54:55.851-04:00Yes, Dads deserve major props as well, ditto for t...Yes, Dads deserve major props as well, ditto for the grandparents! So, props to you, PJ!Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-35102139372968581242013-07-18T20:54:18.571-04:002013-07-18T20:54:18.571-04:00Anon, I'm actually putting up a post about tha...Anon, I'm actually putting up a post about that next week. I totally relate; I get that in real life and sometimes here on the blog, too, and it also bothers me. I know people mean well but, just like you said, I'm just caring for my son, who happens to need a little more help than other kids. Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-88924932670381518622013-07-18T10:21:34.980-04:002013-07-18T10:21:34.980-04:00You sure are on the right track. If you have a spe...You sure are on the right track. If you have a special needs child and you dont stop the pinching, bitting, kicking etc.. early on in their life when they get older and attend school other kids are not going to want to be around them because of the gressive streak they now have. So many people look at our kids who are in wheelchairs and have CP and they automatically think they have a low IQ and dont understand, well my son is not verbal but he understands everything you say to him. He defiantely knows the word NO. He is in high school and is loved by so many of the kids and staff in school. He even was asked to the prom by a " typical student"!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-86520065054763521952013-07-18T10:13:48.640-04:002013-07-18T10:13:48.640-04:00This may sound odd but I am a mother of a special ...This may sound odd but I am a mother of a special needs boy and it drives me nuts when people say * Oh, your such a good mom, he is so lucky to have you, you take such good care of him..blahh...blahh,,,blahh. First of all, I would take care of him the same way if he were NOT special needs and secondly, its not that I am such a great mom, I am just a mom doing what moms should do, take good care of their kids. Unfortunatley there are too many moms (and dads) that dont care for these kids like they should so it makes us, in other peoples eyes look great. Bottom line we are just doing what moms are suppose to do.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80053395016314069332013-07-18T00:35:20.269-04:002013-07-18T00:35:20.269-04:00All true. All so very, very true!All true. All so very, very true!Out One Ear - Linda Atwellhttp://outoneear.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48087435414862939922013-07-17T16:49:37.402-04:002013-07-17T16:49:37.402-04:00This so needed for families of special needs kids....This so needed for families of special needs kids. I am just the grandmother but I have felt so many of these things when I am the one providing a short respite for my son and daughter in law. A little more help for Dads please - they are part of the dynamic as well.PJhttps://www.blogger.com/profile/14278614937927105775noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-60194028649736660772013-07-17T11:33:23.292-04:002013-07-17T11:33:23.292-04:00Ellen, have you been reading my mind? I'm &qu...Ellen, have you been reading my mind? I'm "guilty" of every single thing on your list!Sylviahttp://faithfulmomof9.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-53016075877728884822013-07-17T00:43:14.320-04:002013-07-17T00:43:14.320-04:00My boys watch a movie/TV/iPad every day at 4pm for...My boys watch a movie/TV/iPad every day at 4pm for 2 hours while I clean the house and make dinner. It is the only way I can get anything done and I don't feel one ounce of guilt about it :-). Thanks for the great list Ellen!Jennyhttps://www.blogger.com/profile/16213590209738598377noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-7198606918459595302013-07-16T17:15:03.286-04:002013-07-16T17:15:03.286-04:00Thank you!Thank you!stephaniehttps://www.blogger.com/profile/15966764582179459848noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-80435477157892015122013-07-16T17:05:32.988-04:002013-07-16T17:05:32.988-04:00Wonderful piece, Ellen. Sharing! xoWonderful piece, Ellen. Sharing! xoLiane Kupferberg Carterhttps://www.blogger.com/profile/07832590335988875870noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-5389367161771512202013-07-16T16:02:07.902-04:002013-07-16T16:02:07.902-04:00Thank you so much for this post! I needed it!Thank you so much for this post! I needed it!Kelli McIntoshhttp://www.notjustanyone.orgnoreply@blogger.com