tag:blogger.com,1999:blog-401303964563152307.post470954440945312446..comments2024-03-28T21:36:55.157-04:00Comments on Love That Max : Max's handsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-401303964563152307.post-85978124601321995662013-09-25T13:57:32.659-04:002013-09-25T13:57:32.659-04:00Abby has low tone in her arms and hands and high t...Abby has low tone in her arms and hands and high tone in her legs and feet. Yet, Abby amazed me today by walking for 4 minutes unaided. I was surprised because Abby struggles to walk due to increased tone in her legs and feet. Unlike Max, Abby has floppy loose hands. <br /><br />I agree with what Elizabeth says, children are amazing. Like Elizabeth, I'm amazed how much Abby does when she is motivated. tharahttps://www.blogger.com/profile/06178926420365797564noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-21272373112082202732009-12-01T18:18:11.637-05:002009-12-01T18:18:11.637-05:00These children are amazing, aren't they? This ...These children are amazing, aren't they? This is such a lovely post, the attention to Max's hands reminds all of us to be mindful. My daughter has long had a right-sided weakness/hemiplegia and uses her right hand as a "helper" hand. I'm always amazed at home much more she can do when REALLY motivated.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-66002185020210031722009-12-01T09:21:16.962-05:002009-12-01T09:21:16.962-05:00Beautiful, beautiful post, Ellen. Emmett, too, &qu...Beautiful, beautiful post, Ellen. Emmett, too, "makes it work" and shows me everyday that he's forging his own path in the world.<br /><br />[Please exclude me from the give-away! I'm still in love with my necklace.]Julia O'Chttps://www.blogger.com/profile/16330856629856439993noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-91562914412424267692009-12-01T01:12:47.676-05:002009-12-01T01:12:47.676-05:00Chloe's hands sound very similar to Mr Max'...Chloe's hands sound very similar to Mr Max's. Her spasticity is variable, so they're either floppy or tight, but usually tight, and especially on that right side. I know exactly what you're talking about comparing the hands to other babies in the mall. I swear, I did the exact same thing. It's hard to accept that something is "wrong," but at the same time, everything is just as it should be. I'm so happy Max is making such great progress! I'm sure you will never cease to be amazed by him. Never.Tara Bennetthttps://www.blogger.com/profile/18445133464180170403noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-90691164776827682122009-11-30T23:43:17.762-05:002009-11-30T23:43:17.762-05:00Great post! It is amazing what we can take for gra...Great post! It is amazing what we can take for granted and also how our kids can adapt. I do appreciate and notice all the incremental changes now too in a way I never could before Oscar was born.Maryhttps://www.blogger.com/profile/11399324383367077919noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-48672245773436443842009-11-30T23:03:02.922-05:002009-11-30T23:03:02.922-05:00I love watching my daughter grow and change before...I love watching my daughter grow and change before my eyes. She also doesn't have much of a pincher grasp and her ataxia makes her hands shake so bad she can hardly do anything without knocking something over. But she adapts. She manages. She experiments and figures out what works for her, and not all of it came from a therapist. I am constantly impressed with her resilience.Renahttps://www.blogger.com/profile/15911608453762091207noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70353946485788401302009-11-30T22:08:14.850-05:002009-11-30T22:08:14.850-05:00hay nothing stops him just like someone I know ...hay nothing stops him just like someone I know lolAZ Chapmanhttps://www.blogger.com/profile/07649451111980332722noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4866603124304642042009-11-30T17:30:53.904-05:002009-11-30T17:30:53.904-05:00What a great post. Max is amazing! I love to hear...What a great post. Max is amazing! I love to hear how he manages to do things despite the limitations his body tries to set for him. He looks really good playing with that car. : ) Emily keeps her hands in a fist a lot of the time. I am hoping that changes as she gets older and she figures out ways to get things done.Wherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-87120143903166978772009-11-30T15:54:10.149-05:002009-11-30T15:54:10.149-05:00Beautiful post, Ellen. Charlie's a lefty too!...Beautiful post, Ellen. Charlie's a lefty too! Make me nuts sometimes since they seem to put all the good stuff on the right side of toys.Katyhttps://www.blogger.com/profile/02189007616883663434noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-33822611361649361692009-11-30T13:16:33.493-05:002009-11-30T13:16:33.493-05:00Wow - our journey's are so different, but read...Wow - our journey's are so different, but reading this post brought out the same emotions and thoughts I have about my son's hands. <br /><br />He was born with a rare craniofacial syndrome that along with midface retrusion and premature fusion of sutures in the head, also includes fusion of some or all of the bones in the hands and feet. Aiden's fingers were fused at birth, and have been separated into 10 beautiful fingers in 2 surgeries. We're coming up on one year "post-surgery" - and we're finding his use of his hands more and more amazing each day. They will never be "normal" (he is missing one of the joints in each finger) and he may never be able to do certain fine motor things like buttoning a shirt or snapping, but he gets along just fine. And he is a blessing. :)<br /><br />Beautiful post - sometimes it is the little things that we find ourselves worrying about/caught up in. But in the end, I honestly think we'll find that with kids like ours, they'll prove us wrong every step of the way. Best wishes to you guys!Tarynhttps://www.blogger.com/profile/17301740249699821366noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-70951108569066490862009-11-30T12:19:33.531-05:002009-11-30T12:19:33.531-05:00What a great post, Ellen!
I find myself watching ...What a great post, Ellen!<br /><br />I find myself watching Connor's hands a lot too. We call them his "starfish hands" because his fingers taper down-- part of his genetic condition. He's able to do a lot more with them now too, though he doesn't have functional opposable thumbs, which makes gripping pretty hard for him.<br /><br />Connor kept his hands fisted for a long time too. It's amazing how they've bloomed open in the past year. <br /><br />Max is getting so big! Childhood is so fleeting, isn't it? Blink and you'll miss it.<br /><br />~JessJesshttps://www.blogger.com/profile/06306757421878995110noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-63585262874265180702009-11-30T09:43:52.470-05:002009-11-30T09:43:52.470-05:00I remember how miraculous my daughter's develo...I remember how miraculous my daughter's development was after having my son (she's the second born). They pick up everything by osmosis -- effortlessly -- all the things our kids have to work so painstakingly to do.<br /><br />Very moving post.<br /><br />Has Max had casting on his strong arm -- or Botox? I realize the latter may not be appropriate if he has both tight and loose muscles. CheersBLOOM - Parenting Kids With Disabilitieshttps://www.blogger.com/profile/06901482901008135659noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-36596980395807005512009-11-30T09:29:21.538-05:002009-11-30T09:29:21.538-05:00Isn't it amazing what these children can accom...Isn't it amazing what these children can accomplish, Ellen? And we, as parents, have to learn about acceptance and reality, when they mostly just accept things, as is. I am constantly reminded about expectations and reality, when I see what Faith has managed to do. Way to go MAX!Candacehttps://www.blogger.com/profile/04201448627487443779noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-46781296227071853932009-11-30T06:22:20.986-05:002009-11-30T06:22:20.986-05:00Max is going to just continue to do his thing...in...Max is going to just continue to do his thing...including amaze you and us every single day. <br /><br />I can totally understand your 'disappointment' if you want to call it that. Jonathan is seemingly fine...until you try and put a glove on his left hand. He can't keep his fingers straight, they automatically buckle when pressure is put against them. Makes me sad every time I see it. So we don't bother anymore with gloves...mittens only in this house! For EVERYONE!S Hhttps://www.blogger.com/profile/09073269506657873579noreply@blogger.com