tag:blogger.com,1999:blog-401303964563152307.post3341440228985315909..comments2024-03-28T03:35:52.176-04:00Comments on Love That Max : Stuff for kids with special needs: lots of good findsEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-401303964563152307.post-77756191291209189432016-09-26T04:38:11.694-04:002016-09-26T04:38:11.694-04:00Hi, my name is Jonathan Smith and I invented a inf...Hi, my name is Jonathan Smith and I invented a inflatable safety bed for travel with special needs people inspired by my son that has angelman syndrome. If anyone knows of any expos in driving distances of Ohio we are trying to find places to share our product with families it could help. please email me at limitless@safeplacebedding.com or per our site at www.safeplacebedding.com Anonymoushttps://www.blogger.com/profile/02190367923845489810noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4395448903941388602011-09-24T14:10:41.643-04:002011-09-24T14:10:41.643-04:00Melissa-- here is a trailer/stroller with lots of ...Melissa-- here is a trailer/stroller with lots of conversion options including a hiking one where you can tow using backpack-like straps... maybe they could go under a backpack? http://www.chariotcarriers.com/english/html/cx_conversion_kits.php?conID=4&flaID=Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-17306628283441588622011-09-24T12:33:00.755-04:002011-09-24T12:33:00.755-04:00I have just been looking at the website and they e...I have just been looking at the website and they even have a hiking attachment <br />http://www.chariotcarriers.com/english/html/index.phpClairenoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-64999741904856004482011-09-24T12:29:00.718-04:002011-09-24T12:29:00.718-04:00Hi Melissa, I am thinking about something like thi...Hi Melissa, I am thinking about something like this for my son http://www.chariotcarriers.com/english/html/index.php. I'm not sure what weight they go up to but I reckon with some good mountain bike tires it would get over some rough ground. <br />Hope you find something suitable and can continue hiking for years to come. <br /><br />ClaireClairenoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-30854429221737860672011-09-23T11:29:15.200-04:002011-09-23T11:29:15.200-04:00We go hiking and currently we use a special made &...We go hiking and currently we use a special made "baby hawk" to carry our almost 60 lb son on our backs! (pictures in my Facebook albums (Melissa Placenta-Friday Lewis)<br /><br />I have not heard of one of these expos before! <br />Have any of you ever seen anything to help a child/ adult to be able to travel on difficult trails? Like a Rick shaw type thing that we could pull? Anything??? <br /><br />I LoVE carrying him but we would like to do actual back packing, so we need to carry supplies/ water too! Lolmelissahttps://www.blogger.com/profile/16477136507144319697noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-29073513085880821562011-05-26T11:48:46.413-04:002011-05-26T11:48:46.413-04:00Ellen, I am catching up on my reading! Have you t...Ellen, I am catching up on my reading! Have you tried using a folding step stool or mini-ladder to get Max in and out of the minivan, rather than lifting him? You can leave the stool/ladder in the van, unfold it when you need it, hold his hand while he steps up (one or two steps, depending on the kind you buy) and get him into the seat without killing your back. Then, you fold the thing and toss it in the vehicle. This is how we get in and out of grampa's truck, which is a million miles off the ground!Felicianoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-52372643289376796342011-05-25T16:40:09.479-04:002011-05-25T16:40:09.479-04:00With the EnterVan I would reccomend no other strap...With the EnterVan I would reccomend no other straps than the 500 dollar crank ones...an able bodied person cranks them for you. They are so good, you don't tip or move an inch at all.Toonerhttps://www.blogger.com/profile/13035308590730363327noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-66252162086773460132011-05-25T12:03:01.288-04:002011-05-25T12:03:01.288-04:00We go to the Ability Expo every year, we just went...We go to the Ability Expo every year, we just went to the one in LA last month. :) Love it there!ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-25712753933626031252011-05-24T12:31:29.751-04:002011-05-24T12:31:29.751-04:00Hi. The company is Ross Daniel Adaptive apparel. R...Hi. The company is Ross Daniel Adaptive apparel. RDadaptiveapparel.com, they make something called ProtectTees. <br /><br />There's also Adaptive Clothing Showroom (thanks to my awesome friend Wendy for finding that for me) at adaptiveclothingshowroom.com.<br /><br />Hope this helpsEllen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-4007069644103290102011-05-23T22:32:13.080-04:002011-05-23T22:32:13.080-04:00Do you remember the company that had the drool pro...Do you remember the company that had the drool proof shirts? My son ruins all his shirts drooling and chewing on them.<br /><br />aprilagear69https://www.blogger.com/profile/02897206371401802215noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-64315452374539498712011-05-23T15:52:14.645-04:002011-05-23T15:52:14.645-04:00We went to that Expo and wound up spending the who...We went to that Expo and wound up spending the whole day there trying things out and talking to other families. I do not have any photos, but your post makes me think I should have taken some.<br /><br />I loved getting an overview of the equipment out there and trying it out with my daughter because to get a chance to demo that many different kinds of equipment from our center would take years! I highly recommend attending one of these expos if you are in the market for any kind of equipment.Kristinahttps://www.blogger.com/profile/13259709507156454270noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-32756133028456916192011-05-23T13:56:37.837-04:002011-05-23T13:56:37.837-04:00I haven't tried technical fabrics like Dri-fit...I haven't tried technical fabrics like Dri-fit—I'm going to talk with someone about making Max some clothes with that. He is also in need of pants he can easily pull down himself, nobody seems to have any good ideas for that. If the pants even if the teeniest bit of elastic and he has to tug, it's hard for him. I am thinking of getting some pants that have Velcro openings.<br /><br />Shasta, I kid, as I tend to do! No offense intended toward your sis.Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-40341140911574712552011-05-23T12:53:52.049-04:002011-05-23T12:53:52.049-04:00I think that having the people in prison training ...I think that having the people in prison training the dogs is GREAT! We're going to need one - within the next year - and the price of a trained dog is waaaay out of our budget. I wish this was a program in EVERY prison - they'd learn a new job skill, take pride in their work, know they were helping someone that really needs it, and lower the cost!<br /><br />And sometime this summer, we get to start looking at wheelchairs. We have medicaid - which is a blessing and a curse - blessed to have it, but we only have it because Mango is disabled - a catch 22. But I hope we can get approved for one that has a nice look to it - he's going to be using it for a few years!jerrihttps://www.blogger.com/profile/17470360086223393027noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-89464053123271183622011-05-23T06:40:50.410-04:002011-05-23T06:40:50.410-04:00I have seen TV shows about the prisoners training ...I have seen TV shows about the prisoners training assistance dogs--they run a pretty strict program there. Training the dogs is a privilege they have to earn, and if they screw up, they get kicked out of the program.<br /><br />I get special needs catalogs at home, and I have to restrain myself from buying EVERY cool thing I see. Last month I finally allowed myself to buy a few things for my 15 year old-- yankz shoe laces, redi-space paper, and a book (technically for me) about transitioning an autistic teen from HS to real life.sarahhttps://www.blogger.com/profile/01751389029725410849noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-78159489587663375112011-05-23T05:12:18.329-04:002011-05-23T05:12:18.329-04:00Is it bad that I would LOVE to go to one of these?...Is it bad that I would LOVE to go to one of these? If you know what I mean... I wish there was an Australian one!Selenehttps://www.blogger.com/profile/16906565055142387639noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-12298686707567245592011-05-23T00:37:33.755-04:002011-05-23T00:37:33.755-04:00Wow, super cool expo. I wanna go, and, like you sa...Wow, super cool expo. I wanna go, and, like you said, many of those toys look great for us mere mortals.<br />BUT I gotta slam you for the dig on people in prison. My sister is in prison and that doesn't make her a bad person -- just someone who made some bad choices. With more and more people in prison (1 in 10 -- way more than other countries!) I think people are going to have to stop writing off a good portion of our population.<br />Anyway, I'm not that offended, just using the opportunity to get up on my soap box.Shastahttps://www.blogger.com/profile/01013565031179610593noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-13187108441706927662011-05-22T23:11:14.014-04:002011-05-22T23:11:14.014-04:00I was actually just thinking the same thing Andi s...I was actually just thinking the same thing Andi said.. there's that dri-fit material nike makes. And all the other running makers seem to have something similar on the market. They are tres cool and Max will fit right in with all the runners in Central Park.Susannoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-43705820069253627612011-05-22T21:35:02.859-04:002011-05-22T21:35:02.859-04:00Have you tried wicking technical fabrics? It gets ...Have you tried wicking technical fabrics? It gets mighty humid (read: sweaty) down here on the Gulf Coast and that's what I where most of the time during the summer - not just while exercising. It might work for Max...Anonymoushttps://www.blogger.com/profile/14332891322312545635noreply@blogger.com