tag:blogger.com,1999:blog-401303964563152307.post3055412382416080887..comments2024-03-28T03:35:52.176-04:00Comments on Love That Max : Raising kids with special needs and roller coaster daysEllen Seidmanhttp://www.blogger.com/profile/01433429847255621203noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-401303964563152307.post-15952500414185301042013-06-16T15:44:35.582-04:002013-06-16T15:44:35.582-04:00Are you joking? CP is not a degenerative disease. ...Are you joking? CP is not a degenerative disease. I dont think the company even knows what a degenerative disease is to be honest. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-40405179918349331622012-07-05T11:40:52.690-04:002012-07-05T11:40:52.690-04:00We are huge fans of fate. It's a bummer about ...We are huge fans of fate. It's a bummer about the whole insurance fiasco though.Special Needs Swimminghttp://www.sensoryswim.com/specialneedsswimlessonsnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-65867096157736293722012-06-23T08:04:00.634-04:002012-06-23T08:04:00.634-04:00Mine are just grey.Mine are just grey.Ericnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-9728158842224780102012-06-23T00:00:10.372-04:002012-06-23T00:00:10.372-04:00What especially helps with the roller coaster ride...What especially helps with the roller coaster ride is stopping to connect with people here, relate, trade noes and share stories. <br /><br />Hi, Eric! Nice to have you here. That is great that you ask for help if you need it; Max still needs to learn that. About the braces: He wears them at school and on and off over weekends, on both legs. They really help keep him steady! His are blue, with trains, planes and autos (his favorite things).Ellen Seidmanhttps://www.blogger.com/profile/01433429847255621203noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-29528669270020218412012-06-22T22:47:56.238-04:002012-06-22T22:47:56.238-04:00Roller coaster days are the norm around here - I t...Roller coaster days are the norm around here - I think of my house as a Bi-Polar household with the mood swings my Autistic son has & how we ride along with him, plus the good things that happen with regard to milestones & then the horrible meltdowns & tantrums. I'm happy happy when things are good, just gleeful - and totally crying uncontrollably when things are bad. Sometimes within an hour of each other. Thank goodness for those good times though.Jenny S-Anoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-3609179729299160012012-06-22T19:33:47.910-04:002012-06-22T19:33:47.910-04:00I am assuming they consider cerebral palsy degener...I am assuming they consider cerebral palsy degenerative?!?! Are you kidding me! Honey, write a letter, or give me a pen and I will write one for you! {{Hugs}}Judithhttps://www.blogger.com/profile/10094983729103782742noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-37958341251089569892012-06-22T17:02:42.504-04:002012-06-22T17:02:42.504-04:00Dear Mrs. Seidman,
My name is Eric and I am 13.I h...Dear Mrs. Seidman,<br />My name is Eric and I am 13.I have Spastic diplegia Cerebal Palsy.My mom reads your blog and thought I should comment about the pity thing.I hate pity.If I need help I ask, otherwise I am fine. I noticed you said she stared at his braces.Does he wear leg braces all the time? On one leg or 2? I always wear leg braces.<br />From<br />Eric K. <br />age 13Ericnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-26873825009104704152012-06-22T15:39:15.975-04:002012-06-22T15:39:15.975-04:00Great post. Love the analogy and your insight. Tha...Great post. Love the analogy and your insight. That pic of Max is so cute-- he looks so much like his daddy in it! xocarpoolcandyhttp://carpoolcandy.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-2342556320195808982012-06-22T14:45:59.258-04:002012-06-22T14:45:59.258-04:00Life is a rollar coaster especially when your deal...Life is a rollar coaster especially when your dealing with teenagers! I am a middle school special ed teacher.One of my sstudents with autism has a similar fasnation with apples.He loves to hold them and throw them but wont eat them.Suenoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-31651960709797519732012-06-22T14:05:29.229-04:002012-06-22T14:05:29.229-04:00I don't think I've ever clicked over to on...I don't think I've ever clicked over to one of your posts faster than I did with this one. I use the term "roller coaster" a lot. A lot a lot.<br /><br />As with any special needs mom - heck ANY mom - my ups and downs are directly connected to those of my children. Not everyone gets that. <br /><br />Thanks for sharing your story!Jen Ericksonnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-43332473553765552122012-06-22T10:12:54.299-04:002012-06-22T10:12:54.299-04:00I met my daughter's current speech therapist i...I met my daughter's current speech therapist in a totally random way and she has been an AMAZING part of our team ever since. (She and I were both at a support group for parents of kids with special needs but hadn't said one word to one another. I was talking to another woman and as I was getting ready to leave, that woman introduced me to her friend who happened to be a SLP. Who happened to have expertise we were looking for. Who happened to take Medicaid - something we were actively seeking - and who happened to be a sweetheart.) I hope that your random connection works out as well! Keep going UP UP UP UP UP!!!!!Marlahttps://www.blogger.com/profile/16809949267562980590noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-12380047339084768702012-06-22T09:42:19.505-04:002012-06-22T09:42:19.505-04:00I have some experience in the long term care field...I have some experience in the long term care field. It's not a question of degenerative disease, but of the probability a person will develop a need for long-term care. It's the same way people with a history of cancer can be denied life insurance. It's unfortunate, but no one would be able to afford insurance without underwriting.<br /><br />Exceptions are group plans through employers, which generally have to be offered to all employees who are actively at work. If Max works for an employer who offers group LTC, he's qualify. (And group plans are often more affordable than individual plans).tesyaanoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-71239689508279731722012-06-22T09:36:42.019-04:002012-06-22T09:36:42.019-04:00Oh, I know that roller coaster well-it's reass...Oh, I know that roller coaster well-it's reassuring to know that other people have the abrupt up's and down's as well. Max is truly an inspiration to me and my daughter, he is just so awesome!Marcihttps://www.blogger.com/profile/05228605451968527326noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-68678186416179411902012-06-22T09:33:49.851-04:002012-06-22T09:33:49.851-04:00Think we can all share those days for sure. Some d...Think we can all share those days for sure. Some days I feel like things are going so well, my daughter doing great, moving forward..but then when the not-so-fun things happen, you can't help but feel bad. Think those roller coaster days are the days that I usually break down in tears because it's too much.Tamra Loganhttp://www.speciallivingtoday.comnoreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-10959513687451840462012-06-22T08:12:41.049-04:002012-06-22T08:12:41.049-04:00Thank you for a glimpse of what it's like to r...Thank you for a glimpse of what it's like to ride your roller coaster. Max is lucky to have you in the seat next to his.Korinthia Kleinhttp://the-quiet-corner.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-401303964563152307.post-25027521180161626232012-06-22T08:07:07.835-04:002012-06-22T08:07:07.835-04:00Go Max, Go!
I can't stand it!! He looks adora...Go Max, Go! <br />I can't stand it!! He looks adorable!! Nice bandana.... :)Mehttps://www.blogger.com/profile/05360005389130812039noreply@blogger.com