Friday, June 12, 2009
A word from a seventh-grader with cerebral palsy
Happy Friday! I have a guest post today from Christine over at The Power of Housewife Word of Mouth. She's mom to Regan, 13, a very cool seventh grader who has cerebral palsy. Christine did a q&a with her daughter, I'm sure you'll find it as inspirational as I did.
Christine: In your own words, how does cerebral palsy affect you?
Regan: It is cool and scary at the same time. Cool because it sets me apart from other kids and scary because I just don't know what the future has for me.
Christine: What is your favorite part of having CP?
Regan: Camp definitely. It is my favorite place in the world. I go to three of them and I want to go to more.
Christine: How is your life different from other teens?
Regan: It really isn't that much different. It is sometimes because I can't play all the sports like softball because of my walker. But I do other things like track, cheerleading, tap and ballet.
Christine: When is it cool to have CP?
Regan: Well, I kind of get special attention and treatment and stuff. Like at the cheer competition when a stranger bought me stuff just for cheering with CP. And at Disney and Fiesta Texas they let us cut all the lines, and ride the rides two times. On the Disney Cruise I got to be a pin trader with the crew.
Chrisinte: Do you like sharing with others about your disability?
Regan: It doesn't come up much, but I am not shy about it.
Christine: Is there anything scary about the future?
Regan: I just don't know if I'll ever get married or have kids because I don't think I can do all the stuff I would need to do.
Christine: What do you want to be when you grow up?
Regan: I would like to teach ballet to disabled children, I would like to be a web designer and have my own site, I would love to work at summer camps for the disabled andI also love to travel a lot and want to see the world.
Christine: Do you have any bad habits?
Regan: I crack my knuckles, and I really need to stop that. I am bad about finishing my homework on time. [Looking Sheepish] and ummmmmm, I'm also good at acting helpless around people who don't know me very well so they can do stuff for me.
Christine: What are your good points?
Regan: I am really friendly and make friends easily. I am a great cuddler and really affectionate, and I am nice to almost everyone.
Christine: Why almost everyone?
Regan: Ummmm, sometimes I am not real nice to Rebecca [sister, age 10].
Christine: How do you feel about being a big sister?
Regan: It is hard because Rebecca is kind of a second mom so I don't take care of her as much as she takes care of me. But, I do let her sleep with me when she wants to or is scared. Even if she is a cover stealer.
Posted by Ellen Seidman at 1:15 AM