13 hours ago
Monday, February 16, 2009
Monday Morning Confessional: guilt and kids with special needs
Hope everyone reading this has the day off, it is such a welcome break. We're planning to visit yet another aquarium. Can you have an aquarium addiction? Forget the kids, I think I do.
We had a fun Saturday and Sunday. But, as happens sometimes, come Sunday night I had a nagging feeling that I hadn't done enough for Max. Did I use his Dynavox communication device ENOUGH? Did I play ENOUGH educational games with him and stimulate his brain ENOUGH? Did I get him to use his hands ENOUGH? And even, did I feed him ENOUGH? (He weighs 35 pounds; Sabrina is 45 pounds, per her four-year checkup last week, and the doctor told us to put her on skim milk.).
It's a theme I see running through many blogs about kids with special needs—the guilty feeling that you could always be doing something more for them. Parents in general feel that way these days, I think. It's why we sign the kids up for a kajillion activities. I know four-year-olds taking Japanese (not their parents' native tongue), computer classes, yoga. Sabrina goes to a gym class on Saturdays, and a preschool cooking class and science class during the weekdays. Max gets occupational, speech and physical therapy, at school and at home, along with music therapy. We also take him to a program for kids with special needs on Sunday morning, and I'm looking to find a sport he can play.
I tell myself that I'm doing the best that I can, but sometimes even that seems like not ENOUGH. You know?